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home:diseases:reactive_arthritis [01.05.2019]
sallieq [Evidence of infectious cause]
home:diseases:reactive_arthritis [02.17.2019]
sallieq [Diary of a patient 2005-2012, with follow up posts]
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-<​blockquote>​Nat Rev Rheumatol. 2011 Nov 22;​8(1):​55-9. doi: 10.1038/​nrrheum.2011.173. +<​blockquote>​
-Chlamydia-induced ReA: immune imbalances and persistent pathogens. +
-Gracey E, Inman RD. +
-Source +
-Toronto Western Hospital, 399 Bathurst Street, Toronto, ON M5T 2S8, Canada. +
-Abstract+
 Reactive arthritis (ReA), an inflammatory arthritic condition that is commonly associated with Chlamydia infections, represents a significant health burden, yet is poorly understood. The enigma of this disease is reflected in its problematic name and in its ill-defined pathogenesis. The existence of persistent pathogens in the arthritic joint is acknowledged,​ but their relevance remains elusive. Progress is being made in understanding the underlying mechanisms of ReA, whereby an imbalance between type 1 and type 2 immune responses seems to be critical in determining susceptibility to disease. Such an imbalance occurs prior to the initiation of an adaptive immune response, suggesting that innate cellular and molecular mechanisms in ReA should be prioritized as fruitful areas for investigation. (({{pubmed>​long:​22105240}})) Reactive arthritis (ReA), an inflammatory arthritic condition that is commonly associated with Chlamydia infections, represents a significant health burden, yet is poorly understood. The enigma of this disease is reflected in its problematic name and in its ill-defined pathogenesis. The existence of persistent pathogens in the arthritic joint is acknowledged,​ but their relevance remains elusive. Progress is being made in understanding the underlying mechanisms of ReA, whereby an imbalance between type 1 and type 2 immune responses seems to be critical in determining susceptibility to disease. Such an imbalance occurs prior to the initiation of an adaptive immune response, suggesting that innate cellular and molecular mechanisms in ReA should be prioritized as fruitful areas for investigation. (({{pubmed>​long:​22105240}}))
 </​blockquote>​ </​blockquote>​
  
  
- +Combination antibiotics for Chlamydia-induced arthritis: breakthrough to a cure?  (({{pubmed>​long:​20155826}}))
- +
-Arthritis Rheum. 2010 May;​62(5):​1203-7. +
-Combination antibiotics for Chlamydia-induced arthritis: breakthrough to a cure?​(({{pubmed>​long:​20155826}})) +
-Rihl M, Kuipers JG, Köhler L, Zeidler H. +
-Comment on: +
-Arthritis Rheum. 2010 May;​62(5):​1298-307. +
  
 Editorial Editorial
-Reactive arthritis (ReA) and its association with an extra-articular bacterial infection have first been described almost a century ago. From the view of the entry site of the pathogen, there is a post-urethritic and a post-dysenteric ReA form mainly caused by Chlamydia trachomatis and Enterobacteria (such as Yersinia, Salmonella, or Shigella), respectively. In addition, numerous other but less frequent organisms have been implicated in ReA, including Chlamydophila pneumoniae causing respiratory tract infections at the primary site (1).+Reactive arthritis (ReA) and its association with an extra-articular bacterial infection have first been described almost a century ago. From the view of the entry site of the pathogen, there is a post-urethritic and a post-dysenteric ReA form mainly caused by Chlamydia trachomatis and Enterobacteria (such as Yersinia, Salmonella, or Shigella), respectively. In addition, numerous other but less frequent organisms have been implicated in ReA, including Chlamydophila pneumoniae causing respiratory tract infections at the primary site.
  
-In order to cause ReA, a pathogen must be specifically equipped, i.e. it needs to be an obligate or facultative intracellular organism, travel from mucosal surfaces to the joint, modify its metabolic state in order to evade the host defense mechanism, and survive as a persistent agent. Given all this, Chlamydia trachomatis is the best studied pathogen. This is also because epidemiological work has established this pathogen as the most common organism leading to ReA in the course of a urogenital infection ​(2).+In order to cause ReA, a pathogen must be specifically equipped, i.e. it needs to be an obligate or facultative intracellular organism, travel from mucosal surfaces to the joint, modify its metabolic state in order to evade the host defense mechanism, and survive as a persistent agent. Given all this, Chlamydia trachomatis is the best studied pathogen. This is also because epidemiological work has established this pathogen as the most common organism leading to ReA in the course of a urogenital infection.
  
  
  
-Jd, C., E. Lr, et al. (2010). ​"​Combination antibiotics as a treatment for chronic Chlamydia-induced reactive arthritis." ​Arthritis Rheum.  ​(({{pubmed>​long:​20155838}}))+"​Combination antibiotics as a treatment for chronic Chlamydia-induced reactive arthritis." ​  ​(({{pubmed>​long:​20155838}}))
  
 BACKGROUND::​ Chlamydia trachomatis (Ct) and Chlamydophila (Chlamydia) pneumoniae (Cpn) are known triggers of reactive arthritis (ReA). These chlamydial species exist in a persistent metabolically active infection state in the synovium suggesting that persistent chlamydiae may be susceptible to antimicrobial agents. The goal of this study was to investigate whether a six-month course of combination antibiotics is an effective therapy for patients with chronic Chlamydia-induced ReA.  BACKGROUND::​ Chlamydia trachomatis (Ct) and Chlamydophila (Chlamydia) pneumoniae (Cpn) are known triggers of reactive arthritis (ReA). These chlamydial species exist in a persistent metabolically active infection state in the synovium suggesting that persistent chlamydiae may be susceptible to antimicrobial agents. The goal of this study was to investigate whether a six-month course of combination antibiotics is an effective therapy for patients with chronic Chlamydia-induced ReA. 
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 CONCLUSION::​ These data suggest that a 6-month course of combination antibiotics is an effective therapy for chronic Chlamydia-induced ReA. CONCLUSION::​ These data suggest that a 6-month course of combination antibiotics is an effective therapy for chronic Chlamydia-induced ReA.
  
-===== Patient information ​=====+===== Diary of a patient 2005-2012, with follow up posts =====
  
-Sample PubMed cite(({{pubmed>​long:​18200565}}))+My diagnosis was Reiter'​s Syndrome ​(10 yrswas on methotrexate and cortizone,​until i found Dr Browns protocol,​now on arthrexin and sulphasalazine,​My diet contains quite a lot of dairy,​variety of breads rye and white,​pastas and meat.
  
 +Starting ​  ​BENICAR Q6HR  Mar 13th, 2005
 +Have some pain in my back behind heart has been there for weeks at least also pain in centre of chest severity varies but has improved markedly since wearing noirs and avoiding sun and light,also changing diet,​stopped sulpasalazine and mino 3 days ago,have not noticed any major change in level of pain.
  
 +Day 9
 +The pain in front of my chest has decreased about 40%,still got pain in the back on both sides of the spine(but decreased)seem to sweat easily,no headache,​neck stiff and painful to turn(ok if i dont turn head) had some slight pain in right side of head,main knuckle on left hand has sharp pain when clenching fist,​(middle finger,​middle knuckle)knuckle on little finger right hand has some tenderness when pressed(this knuckle started to swell physically under the skin about 10 months ago)but has not been tender till now,still got some tenderness under left foot(ball of foot)was worse last week,knees are better,was very light headed yesterday almost passed out a couple of times,​certainly fee something is happening(generally less pain this week,a lot due to diet change and body adjusting ​
  
 +Day 15
 + ​AM ​ taking benicar 20mg every 2 hrs have been for approx 36hrs now,did not have a lot of pain last night,​decreased considerably (50%) was reasonably comfortable today,but am beginning to get increase in pain in the left side of my neck,back is sore where my lungs are down both sides,but reduced,​left middle finger ok now(no pain)knees ok,side of left foot and ball of foot tender (no improvement)lower back and left hip much better, spine pain much better,no headache,a little nausea,​hands good,
  
 +This dosing of benicar seens to have helped a lot
 +
 +Day 17
 +Had a very painful night last night,the pain in the left of my neck diminished about 80%,still had some pain on left side of neck just above collar bone but at rear of neck,had breathtaking pain on right side of neck at the base of my scull,could not lift my head had to lift my head physically with my hands,​trying to lift my head without aiding the movement was unbearable could not even turn my head while in bed (quite a dilemma)ok if i did not move,the pain in my back (lung area)has improved some(40%)had some pain in my spine but insignificant compared to my neck,had some shooting pains in my left leg and left arm,my left shoulder has some pain,my knees are ok,my left foot was more painful underneath the ball (difficult to put weight on)the side of my left foot(half way along left side)quite painful 6/10,the front of my chest is stable,my left wrist had *severe*pain when i tried to pick up a plate with a chicken on it,had to take weight off could not hold plate,this has happened a few times since and i have to be careful what i do with this hand because it may give way,can not remember if i mentioned this before but when i clenched mr right before my little finger locked and did not want to straighten immediately(this is o,k now,my fatigue in my shoulders has improved a lot (50%)no head ache ,no nausea,did not sleep (vert little from exhaustion i think) ps i do not take any pain relief other than benicar at the moment.
 +
 +Day 19 I spoke too soon about the pain,it came back with a vengeance last night,did not sleep all  night,it is strange that most of my pain is on my left side,and this is the side which was first involved with my Reiter'​s syndrome,​another member told me that carbs are bad if you have ankleosing/​spondilosis which involves spinal pain,is this correct ??,i am  handling the pain at the moment but feel that my diet is exascerbating my condition,​the way i am seesawing from mild to extreme pain sounds like what i read about in sun flares and eating sea food or high "​D" ​ foods,but i am not to my knowledge guilty of either of these,i am starting to log my meals to see if i an see any connection, ​
 +
 +April
 +The pain has decreased a lot,neck still quite sore(acute pain)am doing all i can to stabilise my condition,​would like a "​little"​ more improvement before i start minocin,i noted some where on the site that lime patients are treated slightly differently to other th1 patients,​the reason ​ bring this up is because possibly 20 yrs ago i done a lot of horse riding,and after one outing in the bush ended up i the emergency DR surgery with my leg all red and infected
 +
 +Day 27
 +Had a fairly restless night,​plenty of pain in the usual places,​neck,​back,​left hip,left foot,​chest,​lower back,my left knee,my left foot is quite sore at the moment 6/10,my knee is about the same as my foot both are quite painful,my centre finger on my left hand has started to ache again,no nausea.no headache,no let up in pain,just keeps moving around(chest pain has improved greatly
 +
 +Day 29  BENICAR ​ 20MG  Q2HR,  MINO 25MG  Q24HR  taking some tramadol 100mg when nescessary
 +had a lot of pain in my left foot and left knee saturday might ,they are both playing up quite a bit lately,but on the other hand i have had a lot of relief in my upper torso,far outweighs any pain in my foot or knee,the knee is at about 8/10 in the pain leval (very sharp pain in the front centre)my left foot is also very painfull to put weight on,the fire in my chest has gone out but the skin is still sensative to touch,still have some pain in my lungs,and neck (reduced)but this did get *very*painfull last night(sun)when i left mino 30hrs,left hip varies in intensity ,but i am sure if i left mino this would flare up
 +
 +Apr 18th, 2005
 +NECK pain 90% gone (like heaven)am able to sleep,my left foot has been "​extremely painfull",​my knee is ok,have some pain in my back (lung area)my chest has been very sore from time to time,but slightly more to my right,is still quite painfull if i cough,​(sharp pain)i have been nausias all day ,and my nose has been quite watery,i do not have a cold,my left hand is ok,some pain in my right hip (tender spot to push) also have had some lower back pain,more on my left,have had some degree of difficulty passing water at times,no pain,but seems restricted at times,
 +
 +May 10th
 +Have had another day of the same,no let up in pain in my foot,was quite comfortable last night but had 100mg tramadol,​foot has ached badly all day(joints at base of toes)and along left side,left knee has some pain front centre,neck is still stiff,​painfull to turn,centre of chest (breastbone)pain varies can be quite acute,right index finger sore in centre joint,some left hip pain at front has been there for quite a while(not severe)all in all am not getting any noticable relief at the moment,it has realy got a hold on my left foot,can not walk without crutch
 +
 +May 15th
 +Still having severe pain in my left foot (joints at the base of the toes)and also haff way down left side of foot (bone inside swolen)my left knee has varying amounts of pain,​nowhere near my foot pain but painfull none the less,i still have pain at the base of my scull on both sides and have been told there are a lot of lymph nodes there,this may explain why i am having so much trouble in this area?my left wrist has occasional sharp pain when moving,my right index finger is getting worseis noticably more swolen than my left finger,my chest has settled a lot but is still sore(not painfull)the top of my head feels sensative to touch,all in all my herx seems to be progressing slowly at this stage,back to work tomorrow ,see what this week brings,do not know what else to do to slow herx,
 +
 +
 +May 30th
 +Have had the weekend at home,did not get any let up in symtoms,​stayed in bed all weekend,​left foot is still inflamed at the bottom of all my toe joints,​includng my big toe,the whole foot is tender,​there is a noticable lump on the left of my foot about a quarter of the way up from the heel,this is also very painfull,my chest ib painfull in the centre,​although this seems to be varying in intensity,​my knuckles in my left hand stiffen up from time to time,yhe base of my scull on both sides is still giving me hell from time to time,the pain is always there if i move the wrong way or even when turning in bed,i have to take it verrry slowly,​knees feel ok,slight tender spot on left hip bone front,my head feels very sensative and sore,the skin is on edge,as is the skin on the centre of my chest,my foot felt a lot more comfortable this morning (still using crutches)but as the day wore on it started to ache again,but it was nice to have some reprieve from the constant pain
 +
 +June 14th
 +
 +BEEN A FEW DAYS SINCE MY LAST REPORT,HAVE HAD SOME DIFFERENT SYMTOMS,THE PAIN IN MY LOWER SCULL ON BOTH SIDES INCREASED MARKEDLY,I ALSO HAD A RE OCCURANCE OF PAIN IN MY LEFT LUNG BEHIND MY SHOULDER BLADE,MY LEFT HIP AT THE FRONT ALSO WA TENDER,​SEEMS AS F I AM HAVING A MINOR FLARE IN MY SYMTOMS,MY LEFT FOOT HAS ALSO EXPERIENCED PAIN ON THE RIGHT SIDE JUST UNDER THE ANKLE BONE,THE WHOLE FOOT IS VERY SORE NOW ,BUT THE TOES SEEM TO BE NOT QUITE SO ACUTE AT TIMES,I M NURSING THM AS MUCH AS I CAN,AND LATELY AM ABLE TO MASSAGE THEM LIGHTLY,​HOPEFULLY THIS MAY HELP MOVE THE TOXINS,THE CENTRE OF MY CHEST ALSO HAS EXPERIENCED A SLIGHT INCREASE IN PAIN ,HAD QUITE A SEVERE HEADACHE FOR ABOUT THREE DAYS WHILI I SEEMED TO BE FLARING,I THINK MAYBE I ATE SOMETHING I SHOULD NOT HAVE,WAS TEMPTED BY A JUICY BEEF BURGER IN A WHIT BREAD ROLL,DO NOT KNOW IF THIS WAS THE CULPRIT ​ BUT MY INCREASE IN SYMTOMS SEEMS TO COINCIDE WITH ABOUT THIS TIME,MY SYMTOMS SEEM TO BE EASING BACK TO WHERE THEY WERE LAST WEEK GRADUALLY,
 +
 +__Foundation Staff reply__
 +
 +  * Most meat has significant quantities of Vit D. It is in the feed supplements,​ and especially bad in cattle which are not '​free-range.'​ There is a US Patent which says that beef is more tender if the animal is injected with high dose Vit D just prior to slaughter - so you always run the risk that this procedure has been followed in higher-grade beef cuts.
 +  * 
 +  * The flour in the roll may have been fortified with Folic Acid.
 +  * 
 +  * The sauce may have contained Monosodium Glutamate.
 +  * 
 +  * You may have had a pickle which had been processed with the coloring Yellow #5 (E103)
 +
 +
 +July 5th
 +SINCE i last posted ​ i have been having a pretty rough time of it,did not get any descent sleep all weekend,had extremely painful left foot,the pain has now spread around my ankle(side and front)and i also have a dull ache in my bone that goes up my leg on the outside,​this is no problem pain wise but it is new,the pain in my foot n the other hand is very intense,my right foot is also experiencing some strange sensation on the surface of the skin in the area of the arch,my left  hip is still sore  to varying degrees,​sometimes quite painful,the left lung area also has some pain if i take a deep breath,my chest s not so bad,but the skin is still sensitive,​my right index finger froze up the other day and it was too painful to move,but this has settled some now ,but is still swollen,​the ​ glands in my neck have also been affected,​all in all i seem to be having quite a flare,am not sleeping very well,lucky to ge 4 hrs per night,i am also getting an ache right up the length of my left leg in the bone it seems can not think of anything else at the moment,but i am experiencing some new symptoms.the pain moving up my ankle i think is a good sign
 +
 +August 29th
 +FOOT PAIN SEEMS TO HAVE REACHED A POINT WHERE IT IS NEITHER GETTING BETTER OR WORSE,STILL PAINFULL TO WALK BUT COMFORTABLE AT NIGHT,I HAVE STARTED CLINDY TODAY 33MG FIRST DOSE WILL KEEP YOU INFORMED WITH MY PROGRESS,I AM STILL HERXING IN MY RIGHT INDEX FINGER ALSO,MR WRIST SEEMS TO HAVE SETTLED,​THIS WAS QUITE PAINFULL TO TURN  AND I COULD NOT TRUST MYSELF TO PICK  ANYTHING ​ AS MY HAND WOULD GIVE WAY WITH THE PAIN(SEEMS BETTER NOW)I HAVE HAD SOME TWINGES IN MY LEFT HAND (FINGERS)AND ALSO MY RIGHT HAND,MY TAIL BONE IS STILL SORE,    ​
 +
 +September 24th
 +LAST WEEK I HAVE INTRODUCED QUERCETIN AND ALSO AM ALTERNATING MINOCIN AND AKAMIN (A GENERIC BRAND OF MINOCYCLIN AVAILABLE IN AUSTRALIA)I HAVE EXPERIENCED SOME SEVERE HERX SYMPTOMS IN MY BREAST BONE AREA ,A REPEAT OF EARLIER SYMTOMS WHEN I FIRST STARTED THE PROTOCOL,MY FOOT IS STILL QUITE SORE AS IS MY TAIL BONE AND INDEX FINGER R/HAND,I AM STILL VERY RESTLESS AT NIGHT AND MY BODY TEMP SEEMS QUITE HIGH ALL THE TIME,I ALSO STILL HAVE A TENDER SPOT ON THE CORNER OF MY HIP ,MY NECK AND SCULL PAIN SEEMS TO HAVE ALL BUT RESOLVED ITSELF,THE PAIN IN MY FOOT SEEMS TO BE MORE IN THE CENTRE AREA OF MY FOOT BETWEEN THE TOES AND MY ANKLE (THE MAIN BULKY AREA ,I SEEM TO BE EXPERIENCING MORE HERX SYMPTOMS SINCE INTRODUCING CLINDY AND POSSIBLY ALTERNATING BRANDS OF MINOCYCLINE,​
 +
 +October 10th
 +SYMPTOMS HAVE GENERALLY DETERIORATED,​LEFT FOOT PAIN HAS INCREASED,​EXTREMELY PAINFUL TO WALK EVEN WITH CRUTCH,THE ARCH ON THE TOP OF MY LEFT FOOT IS ALMOST TOO PAINFUL TO TOUCH,THE SKIN IS VERY SENSITIVE TO TOUCH,AS IF BURNT SKIN,BUT THEN THERE IS ALSO PAIN ON MY BIG TOE JOINT AND SWELLING,​THE LONG BONE THAT EXTENDS UP THE UPPER ARCH OF MY FOOT FROM MY BIG TOE IS ALSO EXTREMELY SENSITIVE,​MY TAIL BONE IS STILL SORE,MY RIGHT INDEX FINGER IS  SORE AND SWOLLEN.I AM EXPERIENCING PAIN IN MY LEFT LOWER RIB CAGE AND ALSO MY BREAST BONE,I HAVE HAD SOME PAIN IN MY STOMACH ALSO,CAN NOT THINK OF EVERYTHING BUT THERE IS NOT MUCH THAT IS NOT ACHING,BUT MY FOOT S BY FAR THE WORST,​SYMPTOMS HAVE DETERIORATED SINCE INTRODUCTION OF CLINDY,HAD A ROUGH WEEKEND ,GLAD TO BE BACK AT WORK MONDAY ,AT LEAST IT TAKES MY MIND OFF THE PAIN ,MY BODY STILL BURNS (RADIATES PLENTY OF HEAT)CAN NOT BEAR TO PUT MY FOOT UNDER THE BLANKETS AT NIGHT AS PAIN INCREASES WITH HEAT
 +
 +**2006** Jan 17th
 +HAVE DEVELOPED SOME SORENESS IN THE LOWER SECTION OF MY SPINE ABOUT 1/3 OF THE WAY UP VERY TENDER TO PUSH ON,MY COXIC BONE SORENESS HAS DECREASED TO THE POINT IT IS BARELY NOTICABLE,​HAVE A SORE SPOT ALSO JUST ABOVE MY ANKLE BONE ON MY RIGHT FOOT,MY LEFT FOOT HAS AT TIMES FELT ALMOST NORMAL(ALMOST AT TIMES!)HAVE HAD SOME CRAMPS IN MY RIGHT FOOT ESPECIALY,​AND SOME SORENESS IN THE TOES AT TIMES  (NOTHING LIKE I HAD IN MY LEFT FOOT) AM STILL GETTING PAIN IN MY ABDOMIN AND GROIN AREA (BEARABLE),​SHARP PAIN ON THE RIGHT SIDE WHEN I MOVE MY LEG TO GET UP OR OUT OF MY CAR,MOST OF THE ABOVE SYMTOMS ARE REASONABLY NEW AS SOME OLD ONES HAVE GONE,AND THIS I FIND VERY ENCOURAGING,​STILL GOT SOME SKIN ITCHING,​KNEE SORENESS SLIGHTLY LESS  THATS ABOUT ALL FOR NOW
 +
 +Jan 30th NOT MUCH NEW HAPPENING AT THE MOMENT,LEFT FOOT STILL IMPROVING,​HAVE HAD SOME RETURN OF SOME SMALL LESIANS IN THE INNER PART OF MY RIGHT EAR THE PAST COUPLE OF WEEKS,SOME DISCMFORT IN MY KNEE JOINTS,AM STILL EXPERIENCING GROIN PAIN ON BOTH SIDES,AS WELL AS SOME PROSTRATE SYMTOMS,​LOWER BACK STILL HAS SHARP PAIN WHEN LAYING DOWN (MAKES IT DIFFICULT TO TURN)GENERALLY STIFF AROUND THE LOWER RIB AREA,NOT MUCH FATIGUE LATELY,BODY TEMP STILL O,K AT NIGHT
 +
 +WILL BE INCREASING MY CLINDY TO 150MG Q48HR TOMORROW FOR THE NEXT COUPLE OF MONTHS,​HOPEFULLY WILL GET ENOUGH HERX TO BE TOLERABLE
 +
 +Jun 22nd,
 +PUSHED MYSELF A BIT TOO MUCH AT WORK I THINK,BODY IS HAVING ENOUGH TROUBLE COPING WITH PROTOCOL ET ALONE WORK 70 TO 80 HRS A WEEK,GOT A BIT TOO MUCH,ANY WAY FEELING A BIT BETTER NOW,GETTING PAIN IN MY KIDNEY AREA ON BOTH SIDES FROM TIME TO TIME SEEMS TO ALTERNATE,​FEET STILL PAINFUL IN THE JINTS IN THE MORNING,​STILL GETTING VERY HOT WHEN I STAY ON THEM FOR A WHILE,​ALMOST BURN,THIS HAS BEEN A PROBLEM FOR YEARS,AS SOON AS I PUT THEM UP(ELEVATED)THE PAIN ALTERS ALMOST IMMEDIATLEY,​THE HEAT SEEMS TO AGGRAVATE THE CONDITION,​THE COLDER THE TEMPERATURE THE LONGER I CAN STAY ON MY FEET WITHOUT BECOMING PAINFUL,​HAVE TAKEN MAGNESIUM FOR MY CRAMPS ​
 +
 +October 13th
 +STILL GOT MY COLD,CAME BACK AGAIN AND SEEMS TO BE TAPERING OFF AGAIN ,BACTRIM SEEMED TO AGRAVATE MY COLD,SEEM TO BE FELING A BIT BETTER SINCE STOPPING BACTRIM AND CLINDY,​SPINE PAIN GONE NOW,GOT QUITE A LOT OF PAIN N THE RIGHT LWER PART OF MY RIB CAGE AT THE BACK,VERYYY SORE WHEN I TWIST,MY SLEEP HAS BEEN TERRIBLE FOR WEEKS LATELY,HAVE BEEN GETTING UP "​ABSOLUTELY STUFFED"​AND DRAGING MYSELF TO WORK,​FALLING ASLEEP ON DUTY,FEEL LIKE I HAVE BEEN RUN OVER BY A TRUCK,HAVE BEEN FEELING QUITE DEPRESSED LATELY ALSO,HAD SOME CHEST PAIN THIS MORNING,​FAIRLY SEVERE IN FRONT SLIGHTLY TO THE RIGHT,MY LEFT SHOULDER IS SLIGHTLY LESS PAINFULL,​THE PAST COUPLE OF WEEKS THERE HAS BEEN A SORE BONE PROTRUDING SLIGHTLY AT THE TOP OF MY LEFT SHOULDER THIS HAS BEN QUITE PAINFULL
 +
 +WENT TO THE SKIN CANCER CLINIC AND HE HAS DIAGNOSED THE SMALL LESION THAT I HAVE BEEN COMPLAINING ABOUT AS A CANCER AND WILL BE REMOVING IT AND TAKING A GRAFT FROM MY SHOULDER IN A COUPLE OF WEEKS TO FILL THE HOLE 
 +
 +October 28th
 +HAVE BEEN TO REMOVE CANCER ON THURSDAY,​SPECIALIST HAS RESERVATIONS NOW AND HAS TAKEN BIOPSY TO CONFIRM HIS DIAGNOSIS,​SEEMS ON THIS OCCASION IT IS NOT AS BLACK AND WHITE AS BEFORE,​POSSIBLY THIS ITCHING THE PAST 10 MONTHS ON AND OFF IS A HERX REACTION
 +
 +December 2nd
 +I AM STILL EXPERIENCING LOWER INTESTINAL CRAMPS ,THE SLIGHTEST STRESS OR EXERTION SEEMS TO BRING ON AN ATTACK,HAVE HAD 5 DAYS OF THIS,​MYLANTA WAS GIVING SOME RELIEF BUT I AM NOW USING GASTRO STOP AND THIS SEEMS TO HAVE GIVEN SOME RELIEF
 +  ​
 +MEDS  MINO 100MG Q48HR  BENICAR ​ 40MG Q6HR ZITHROMAX 1/8  500MG TAB Q 48HR   CYCLE 7 OF ZITH
 +
 +SX RIGHT KNEE HAS VERY SHARP PAIN INSIDE,​ALMOST UNBERABLE TO PUT WEIGHT ON MY LEG,LEFT SHOULDER ALSO CATCHING INSIDE WHEN ROTATED
 +
 +**2007**
 +February 17th
 +NOTICING ​ BRAIN HERX ON DAY OF CLINDY DOSE,​SETTLES BY NEXT DAY.
 +  ​
 +  ​
 +MEDS BENICAR 40MG Q6HR ZITHROMAX 1/8 500 MG TAB Q 11DAYS MINOCIN 100MG 48HR CLINDY 65. MG Q48H
 +
 +                                  CYCLE 17 day 3
 +Am experiencing pain in left kidney towards front,and right kidney at rear,had a lot of pain in my right shoulder blade area last night,some pain in the front of my chest,​feling very fatigued lately,some of the joint pain has eased,​inflamation has subsided a bitpain in right side of neck has eased,wrist pain has eased,right knee pain has eased a bit ,generally inflamation is down but faTigue is up,still hot at night under the sheets,very stiff and achey in the mornings need hot shower to get moving,had to have a naptoday was falling asleep at work,​quercetin is helping me to sleep,was having great difficulty sleeping a couple of weeks ago pre quercetin ,pain in right shoulder blade area extremely sharp when inhaling ​
 +
 +March 24th
 +herx reaction at the moment seems to be quite moderate,​severe lung pain and spinal pain easing,body temp still hot at night,seem to be burning up at times,my partner sleeps on one side of the bed with blankets and i sleep on the other side with one thin sheet half on me and still feel hot at times,but not in pain except feet burn quite a bitstill,!!
 +
 +Have not reported this before but i seem to be growing hair on my head WHERE NONE HAS EXISTED FOR QUITE SOME TIME,I HEARD the protocol made you feel young again but did not expect this
 +
 +
 +May 28
 +Have had A FAIR AMOUNT OF ITCHING LATELYLEFT SHOLDER STILL TRYING T SEIZE IF NOT WORKED,HAVE BEEN GETTING SOME SIMLAR PAIN IN MY RIGHT ARM AND ELBOW,LOWER LUNGARA BOTH SIDES SIL SORE,WAS COMPLETELY STUFFED ON SATURDAY (DAY 6)HAD TO HAVE A NAP IN THE AFTERNOON COULD NOT CONTINUE TO FUNCTION,​HAVE MILD HEAD ACHE CONSTANTLY LATELY,FELT QUITE GOOD TODAY,LAST BIT OF COLD ALMOST GONE,HAVE SOME PAIN IN THE CENTRE OF MY CHEST AGAIN,SARP PAIN SEEMS DEEP INSIDE BREAST BONE,NECK TENDONS STILL SORE,NOT SLEEPING WELL,BODY TEMP SEEMS TO HAVE COOLED A BIT,HAVE HAD SOME SHOOTING HEART PANS,THE SMALL LESION IN MY RIGHT EAR THAT  WAS GOING TO HAVE OPERATED ON (BUT DECIDED TO CANCELL OP)SEEMS TO HAVE CLEARED AT THIS STAGE, KEEP FINGERS CROSSED THIS WAS THE RIGHT DECISION,MY DOC SEEMS TO THINK THERE IS NO REASON TO PANIC OR OPERATE ​
 +
 +July 19
 +MEDS BENICAR 40MG Q6HR ZITHROMAX 3/16 500 MG TAB Q 11DAYS MINOCIN 100MG 48HR CLINDY 112. MG Q48H
 +
 +                                  CYCLE 30 day2
 +Have ceased official work 1.5 weeks now,good to have some time to myself,have started swimming again lately (when sun goes down)need to keep motivated,​have had a lot of upper back pain the past couple of days,left side behind heart especially,​had to get up at 3.30pm and have hot shower and panadole to help relieve pain ,could not sleep,​very!!! sharp nerv type pain possibly radiating from spine,spine has had some inflamed sore sections lately,​lower back/kidney pain/left side more so/left shoulder still giving trouble,​swimming should help this problem,​some tenderness on right side of neck when pressed lightly,​swimming may be helping circulation and possibly helping herx???
 +
 +Just a short note,have been eating some yoghurts lately and they seem to have had an adverse effect on me ,had unbearable pain behind my hear last night,had to take some quarterzone to relieve pain,also took tramal and panadole,i recall this has also happened in the past but i thought i would possibly be o.k at this stage (lucky i had some prednisalone as io could not bear the pain it was so intense
 +
 +**2008** April
 +
 +just a  short note,<​blockquote>​i went to my surgeon that repaired my broken knee 5 years ago to book in for surgery to remove two titanium plates in my leg,i particularly ASKED HIS OPINION on the amount of arthritis present at the site of the multiple fracture he repaired,he said he would have expected to see a lot of arthritis at the site but was pleased to see there was very little if any arthritis at my knee joint,my ankle which was also fractured at the time and went un noticed until about 3 months after my knee repair has obvious signs of arthritis at the fracture site ,so a bit of a mixed bag,no arthritis at knee but arthritis obviously evident at ankle</​blockquote> ​
 +
 +**2009** January
 +have been off demi and zith a few days now,have noticed a 80% improvment in the pain in my left hip(all but gone)looks like this was herx,also seems to be some improvement in the pain in the front of my groin,which was at the sight of my hernia i had repaired last year,anyway at this time only positive pain improvement,​ THROAT still Phlegmy
 +
 +(@4 yrs 10 months on MP) i survived the operation,​could not handle the intravenous pain meds they made me sick,so i tried tramocol and then panadol,​have had stomach pain for about 2 days now ,taking mylanta to stop pain spasams,​starte benicar this morning again,was getting sharp shooting pains up in my sternham and across my chest,has eased now
 +
 +<​blockquote>​I questioned Doc regarding evidence of arthritis at the location of the plates and pins and he told me there was none,(on my previous visit to see him he had told me that even though no arthritis was evident on the x rays ,he was fairly certain this would not be the case when the plates were removed)surprise for him ,but he did not make much of it.
 +
 +
 +As for the condition of my bones,i did specifically ask him to pay attention to the condition of them and if he found them fragile or unusual in regards to the bone,again he commented all seemed good
 +</​blockquote>​
 +
 +Jan 23rd, 2009  have been out of hospital 7 days now,added demi back two days ago,no adverse herx,added zith back today ,will let you know how it goes,am seeing chiro again today,​apparently my hip joints are quite badly affected by arthritis and in his words almost fused ,had a lot of severe pain in nerve at back of left hip,his manipulating has eased this a lot ,and he tells me i need to keep going for quite some time to get some movement in the joint and stop it seizing all together
 +
 +May 10th
 +,removing zith and bactrim has decreased herx to a large degree,​right knee which had plates removed continues to improve,can walk 5klm no pain now,before was stiff next day and painful,but there is currently no pain when walking and no stiffness in the morning,the removal of the plats played a big part ,but there has also been a major improvement since i ceased the anti biotics
 +<​blockquote>​
 +I seem to have my old knee 95% back at the moment it realy feels great,​considering the break was the worst the surgeon had seen in about 20 yrs,the degree of healing has been amazing and i am sure a lot is a result of the protocol,​the surgeon kept on insisting there would be arthritis in the joint even though it did not show in the exray,and when the plates were removed he assured me there would definatly be arthritis evident,​well guess what NO ARTHRITIS there either ,hard for him to admit i had to prise it out of him after the operation,​they don"t like to be proved wrong,but in my case the degree of healing has been beyond what he ever expected.</​blockquote>​
 +
 +My local Gp has finally expressed interest in the protocol and is going to have a look at the prague conference dvd 
 +
 +June 9
 +my lungs were on fire and the tablets seem to have helped,my last cold last year also ended up being a long saga(MONTHS)and i was dreading this year,the only difference between this year and last year is that if anything i have more sun exposure this time
 +
 +I think i would be hospitolised if i did nothing,i did take Benicar sub lingual on quite a few occasions as well as q4hrs and made no difference ,just seemed to be getting worse and coughing up discusting green flem,will see my doc when i get home
 +
 +Colds have never been a problem for me before ,and last about 2 weeks as you say,i felt this one coming on three weeks befor i left on my trip,went on a outing to the city ,and on the way back felt the familiar irritation at the back of my throat,and that was it
 +
 +Resorted TO Tamiflu as anti biotics were not an option,​purchased products to loosen up chest flem,
 +
 +Sept 14
 +Just a short note, have been experiencing some pain in my upper back and lung area 6/10 , also quite a lot of pain in my kidney area radiating across to both sides of my lower back 6/10,seems to reduce when i get up and about , and increases when i am less active at night, still have some phlem problem , but not interfering with exercise regime , swimming alternate days and walking also , herx seems to be increasing since stopping Mino
 +
 +**2010**
 +Feb
 +Seem to be having massive herx ,may have introduced zith at too high a leva
 +
 +Sept
 +Am still experiencing quite a lot of lower back pain7/​10,​take anti informatory to help on a daily basis, sometimes pain gets toooooo much and i need 4 mg quarterzone,​seems to settle issue for approx 1 week,no longer going to chiro or physio,​swimming 5/6 days a week, Off Zith ans Clindy for about a month now ,am also getting pain in spinal cord and upper back area (lungs) quite lethargic at times ,will go to doc this week to get some Liver and Kidney function tests done 
 +
 +Nov
 +sun has not been effecting me anywhere near as much as it used to,going out again this morning,​Sulphur (msm)is the main ingredient in Garlic and horse radish that makes it do its job,does wonders for your body ,can be taken with DMSO apparently with even better results
 +
 +Don't think hospital will be necessary now,if things keep improving as they have been,it realy has been eye opener this Nutrition exercise,it all started when i started looking for treatment for my Brothers lung Cancer,and came to realise LACK OF NUTRITIONAL Minerals combined wit the TOXIC Chemicals we consume play a massive part in this disease process also
 +
 +Lungs are still a problem ,but the back looks like it may be OK 
 +
 +**2011**
 +Jan Benicar 20mg q8hr Minocin 100mg q72hrs ​
 +,lower back pain has decreased significantly with the use of Sulphur /MSM ,CAN NOT BELIEVE THE DIFFERENCE THIS HAS MADE,AM KAYAKING TWICE A WEEK NOW EARLY MORNINGS FOR APPROX 1.5 HRS EACH DAY ,ABOUT 8K-10 KLM  ,I WOULD HAVE NEVER BELIEVED THIS 2 MONTHS AGO , MY FEET ARE STILL GETTING HOT, LUNG INFEVTION ALL BUT GONSun sensativity minimal,not reacting as i used to ,paddle early morings in daylight ,6am to 7.30am ,but no negative noticable herx,wear noirs and protective clothing,​legs partly exposed,​upper body wear thyermal top and spf 50 shirt and Nizerol cream on face and gloves on hands 
 +
 +Feb
 +have decided to up Benicar back to 40mg q8hr , at this early stage it seems to have had some effect on lessening burning feet problem.
 +
 +April
 +Have another issue at the moment ,(never seems to stop) had an inflamed spot on my left arm below my elbow for the past three months or so ,about 1/4 round and red ,anyway it did not seem to want to heal so i put some BLACK SALVE (cansema on it and it reacted immediately,​(it does this when it comes in contact with cancerous cells) . No cancer no reaction!!! pain initially radiated down my arm to my wrist for a few hrs ,then left a bit of a ulcerated sore,am trying to heal it now,played with the scab after showering today and locaed a white grissely centre core going down into my flesh at the centre of where the main scab was ,applied another dose of Black Salve today and it is stinging like hell at the moment ,and the area is swelling, will remove salve later today and clean up and try to prompt tissue to heal , would not heal before
 +
 +had issue with BCC  a few yrs ago and had half my right ear hacked up by the specialist,​and if they saw this ,i am sure they would make a mess of my arm
 +
 +29 April
 +all is going well ,the big hole i had in my arm two weeks ago has almost dissapeared,​just about healed before my eyes, used DMSO, ALSO I BELIEVE SHEET ACCELERATED HEALING PROCESS, MY SISTER SAW THE WOUND after i applied the Black Salve two weeks ago and can not believe how fast the tissue has repaired,
 +
 +Energy levals very good,no pain ,back getting better and better, Feet not burning  ​
 +
 +
 +May
 +Benicar 40 mg q8hr Mino maybe twice a week
 +
 +One thing about the Twice a week Mino, previously i needed more regular ​ Mino to palliate symptoms (i mean pre MP) am slowly trying to wean off
 +
 +Previously stated feet burning gone, maybe i was a bit hasty , but definitely improved greatly:)
 +
 +Lower back pain comes and goes,am not sure that this is entirely due to impinged nerve , went to hospital on the weekend with abdominal pain,​thought it may have been Appendicitis ,but they seem to think it was muscular,​but at the same time they rang me next day to say they were not real impressed with my Kidney function tests , and suggested i see my local Doc to discuss further ,there were some other issues apparently also,all in all they called to see if i was OK,as they could not process my blood that night , my fingernails were almost pure whit a few months ago ,and when i looked that up on the net ,it indicated renal problems, They are not so bad now ,but were worryingly almost entirely white , also the Doc from the hospital asked if i had ever had any Kidney Disease,not the first time i have been asked this
 +  ​
 +July
 +Meds Benicar 40mg q8hr Mino 100mg once a week
 +Back pain has eased quite a bit with quarterzone injections,​currently have quite a bit 6/10 pain left side of back behind lower rib cage , came on yesterday ,dont know what it is ,but seems like some sort of flare, generally not feeling too bad, other than lower back probably feeling pretty good actually, energy levels quite good ,weather changes still seems to have quite an effect on my joints ,had quite a lot of pain in lung area last week when weather changed,but that has gone now, seem to get these painfull flares in my lung behind shoulder blades ,take your breath away type of pain ,very acute ,stays for a few days and then moves on ,not unlike the pain in my left rib area now
 +
 +
 +
 +December ​
 +i use DMSO , SULPHUR AND COLLOIDIAL SILVER 60PPM ,DONT THINK ANYTHING WILL SURVIVE THAT
 +
 +using dmso topically to try to limit risk of infection
 +
 +**2012**
 +Jan
 +
 +short update ,still experiencing lower back pain ,have been trying acupuncture(once so far) no relief yet ,pain seems to move around spine a bit .mainly lower level, L3,L4,L5, BUT BY THE SAME TOKEN ALSO MOVES TO UPPER BACK LUNG AREA IN ADDITION TO LOWER BACK AND ALSO RIGHT kidney AREA ,BEHIND LOWER RIBS , HAVE ARRANGED TO SEE PAIN SPECIALIST AGAIN WITH THE VIEW TO HAVING MORE INJECTIONS IN THE L23 LEVEL,THE FUNNY THING IS I GET CONTRADICTING ANALYSIS OF THE MRI AND XRAYS, NEUROSURGEON SAYS BACK IS NOT THAT GOOD ND HAVE EVIDENCE OF STENOCIS AND BULGING DISCS,BUT PAIN SPECIALIST LOOKS AT SAME IMAGES AND SAYS THERE IS NO EVIDENCE OF STENOCIS AND HE WISHES HIS BACK WAS IN AS GOOD CONDITION AS MINE (REFERRING TO CONDITION OF DISCS )SO I DONT KNOW,​FURTHERMORE PAIN SPECIALIST(APPROX 40YRS EXPERIENCE) SAYS ,NO WONDER NO SURGEON WILL GO NOWHERE NEAR YOUR BACK WITH A KNIFE
 +
 +I was introduced to a old chinese Dr yesterday by my Bank Manager, we have an area in Perth here that is like a small China Town
 +Anyway when i told her about my problem she said easy fix $350 ,fix in 20 mins ,i was surprised at the price ,but she seemed very convincing and guaranteed it would fix me
 +We went out the back and she proceeded to karate chop my lower back by cupping both hands together ,and applying some ointment ,after about 10 mins ,she said all fixed no more problem
 +She sent me home with some herbs to boil up and drink the juice for the next few days ,she was refering to some very old notes in some books handed down in her family ,i boiled up the brew and drank it yesterday (am still alive) and pain has reduced approx 80% , there is still some discomfort ,and i dont know how long this will last , i have not paid her and she insisted if it was not fixed the next treatments would be free of charge ​
 +
 +At least this is better than Cortisone injections and sedation ,and a expensive hospital visit, as i had last time ,she seems to be going to the root of the problem,​rather than supplying pain killers only
 +When i look at the xrays of my spine myself there appears to be no significant compression of any particular disc ,and the spacing between the vertebrae seem consistent ,on this basis i am cautiously optimistic that this may be an indicator that manipulation may be the way to go ,either with her slapping technique or orthopedic Dr /​experienced massage therapy
 +Furhermore her Herbs may be beneficial to my general health
 +
 +Feb 26th, 2012
 +All is well in the health department as far as reiters syndrome symptoms are concerned ,no longer an issue
 +
 +Lung phlegm not also problem at the moment
 +
 +Lower back problem may be being exacerbated by an old horse riding injury ,have orthotic inserts made for my shoes ,one of my feet is leaning in putting pressure on my back, hopefully orthotics will help
 +
 +Feb. did not go on with Chinese meds .
 +But have been concentrating on low carb foods more protein and not much processed food,KEEP AWAY FROM REFINED SUGARS .
 +
 +June
 +Had a cancer removed from my left calf about three months ago ,left quite a big hole in my calf,still healing
 +No real arthritic problems
 +Sun sensativity not much of a problem ,do get some herx if i go out too much day after day in the sun 
 +Did not waste my time or money with biopsy,just applied Black salve(cansema) ,this takes out Melanoma and skin cancer by the roots,if there is no cancer present it does not react, i had a itchy dry piece of skin that kept growing back and irritating me ,a bit like a mosquito bite gets your attention,​it kept coming back(last 12 months only) so i applied the Black Salve ,pain and swelling went down below my ankle ,approx 6" below the obvious cancer site,hole was at least the size of a 5 cent piiece and very deep ,been 3 months now and still healing
 +
 +I had an experience a few years ago where i had a small BCC
 +ON MY RIGHT EAR,TO BE SURE THEY GOT IT ALL THEY HACKED OFF HALF MY EAR AND TOOK A SKIN GRAFT FROM MY CHEST AREA,HAD AROUND 60 STITCHES AND VERRYYYY PAINFULL,​TOOK ABOUT 6 MONTHS TO HEAL
 +i WAS NOT GOING TO FALL FOR THAT ONE AGAIN ( DID NOT KNOW ABOUT BLACK SALVE AT THE TIME ) AM SURE THAT HAD I DONE THE SAME HERE THEY WOULD HAVE REMOVED HALF MY CALF MUSCLE
 +
 +October
 +has been a while since i posted ,Back has been playing up again been back to Osteopath a few time and also massage clinic,​purchased an expensive massage device ,that may have aggravated the problem, still wearing orthotics,​pain is not as bad as it was at worst,at least i can sleep at night ,pain seems to move around my back at times,from one side to the other and also from top to bottom, probably some arthritic problem,​sometimes goes behind my left shoulder blade(painfull to breathe) then moves across to my right shoulder blade ,then down to my lower back again,​exercise can help ,but by the same token can also aggravate the situation , feel pretty exhausted lately most of the time .
 +Trying to get motivated to start swimming again,but last time i went to the pool i ended up with the flu again ,AND SEVERE LUNG INFECTION .Just getting over it now ,since i had Pneumonia about 10 yrs ago,as a result of aspirating after an  operation ,i seem to get chest infections very easily (bloody anesthetists going to sleep on the job)
 +Had some pain in my joints lately also ,situation not looking too good,i feel the root cause of my problem is still there after all this time
 +Have been trying some Borax lately,​maybe that is causing a Herx reaction,​dont know   As mentioned before trying to eat healthy ,dont drink Alcahol ,coffee rarely ,alkaline water most of the time 
 +
 +Dec
 +Have cut out Benicar and Mino , Benicar about 1 month ago,blood pressure has gone back to 120/75 and back pain is improving by the day
 +,i assume due to my increased blood pressure 120/​80now,​arms do not get so fatigued when swimming
 +
 +==== Follow up posts ====
 +
 +
 +**2016**
 +April
 +I got seriously ill ,after a trip to the Philippines ,all the symptoms i had before ,aching painful joints all over ,could barely move
 +My local doctor recommended Methotrexate and anti inflamatory meds ,said i probably had Fibromyalgia
 +I was suicidal ,with pain
 +After analyzing the lead up to my problems , i remembered i had bed badly bitten by bed bugs in the Philippines .
 +I suggested a Lymes test from my doctor and as suspected it came back negative ,as i knew it would !!!!
 +Fortunately i had sent a sample of saliva and hair to a lab in America at the same time
 +The results came back positive with 4 strains of Lymes ,and also pointed out my first infection was around my late twenties
 +Most recently infected by Bed Bugs it said 
 +
 +**2018**
 +since the last time i posted , i have been to Malaysia for 2 rounds of Hypothermia treatment ,with multiple IV Antibiotics
 +This saw the removal of parasites from my stool (yuk)
 +Symptoms dissapeared while i maintained Anti Biotics ,and there were plenty
 +But i do not like the damage they are doing to my gut
 +So i went back to Ozone and herbal suppliments and organic plant based diet
 +DURING my research i discovered Heavy Metals mimics Lymes symptoms *(and i have been a mechanic for approx 40 years )
 +So had hair analysis done and my chromium levels are off the scale , also mercury too high ,and copper
 +Anyway i just started heavy metal chelation therapy (edta and glutathion for now)
 +This may have played a big part in crashing my immune system
 +Thats where i am at now ,detoxing to the max ,it will take a couple of years i think ,but it makes sense to me ,and something i never thought of before ​
 +
 +
 +i believe the heavy metals compramised my immune system and made me susceptible to infection.
 +As for my health at present i am improving every day ,at the moment bouncing out of my skin
 +just hope it keeps going
 +i am eating all organic ,also doing Flax and cottage cheese (Budwig cancer cure) Rebounding maybe 1 hour a day ,and also going to sauna every second day
 +doing daily coffee enemas ,to move poisons.
 +taking charcoal ,bentonite clay and zeolite to catch mould and metals as the progress down to large intestine , to stop them being re absorbed .  ​
 +
 +
 +
 +
 +{{tag>​disease }}
  
-{{tag>​disease incomplete}} 
  
-<​note>​Dear MPKB Reader: You have arrived at one of the articles that has not yet completed the development and review process in the knowledge base. Some of the content here may be helpful, but please know that this page is not complete. There are about 400 articles in the KB, and this is one we are still working on. Thanks for your patience.</​note>​ 
  
 ===== Notes and comments ===== ===== Notes and comments =====
 +
 +My diagnosis was Reiter'​s Syndrome (10 yrs) was on methotrexate and cortizone,​until i found Dr Browns protocol,​now on arthrexin and sulphasalazine,​My diet contains quite a lot of dairy,​variety of breads rye and white,​pastas and meat.
 +
 +Starting ​  ​BENICAR Q6HR  Mar 13th, 2005
 +Have some pain in my back behind heart has been there for weeks at least also pain in centre of chest severity varies but has improved markedly since wearing noirs and avoiding sun and light,also changing diet,​stopped sulpasalazine and mino 3 days ago,have not noticed any major change in level of pain.
 +
 +Day 9
 +The pain in front of my chest has decreased about 40%,still got pain in the back on both sides of the spine(but decreased)seem to sweat easily,no headache,​neck stiff and painful to turn(ok if i dont turn head) had some slight pain in right side of head,main knuckle on left hand has sharp pain when clenching fist,​(middle finger,​middle knuckle)knuckle on little finger right hand has some tenderness when pressed(this knuckle started to swell physically under the skin about 10 months ago)but has not been tender till now,still got some tenderness under left foot(ball of foot)was worse last week,knees are better,was very light headed yesterday almost passed out a couple of times,​certainly fee something is happening(generally less pain this week,a lot due to diet change and body adjusting ​
 +
 +Day 15
 + ​AM ​ taking benicar 20mg every 2 hrs have been for approx 36hrs now,did not have a lot of pain last night,​decreased considerably (50%) was reasonably comfortable today,but am beginning to get increase in pain in the left side of my neck,back is sore where my lungs are down both sides,but reduced,​left middle finger ok now(no pain)knees ok,side of left foot and ball of foot tender (no improvement)lower back and left hip much better, spine pain much better,no headache,a little nausea,​hands good,
 +
 +This dosing of benicar seens to have helped a lot
 +
 +Day 17
 +Had a very painful night last night,the pain in the left of my neck diminished about 80%,still had some pain on left side of neck just above collar bone but at rear of neck,had breathtaking pain on right side of neck at the base of my scull,could not lift my head had to lift my head physically with my hands,​trying to lift my head without aiding the movement was unbearable could not even turn my head while in bed (quite a dilemma)ok if i did not move,the pain in my back (lung area)has improved some(40%)had some pain in my spine but insignificant compared to my neck,had some shooting pains in my left leg and left arm,my left shoulder has some pain,my knees are ok,my left foot was more painful underneath the ball (difficult to put weight on)the side of my left foot(half way along left side)quite painful 6/10,the front of my chest is stable,my left wrist had *severe*pain when i tried to pick up a plate with a chicken on it,had to take weight off could not hold plate,this has happened a few times since and i have to be careful what i do with this hand because it may give way,can not remember if i mentioned this before but when i clenched mr right before my little finger locked and did not want to straighten immediately(this is o,k now,my fatigue in my shoulders has improved a lot (50%)no head ache ,no nausea,did not sleep (vert little from exhaustion i think) ps i do not take any pain relief other than benicar at the moment.
 +
 +Day 19 I spoke too soon about the pain,it came back with a vengeance last night,did not sleep all  night,it is strange that most of my pain is on my left side,and this is the side which was first involved with my Reiter'​s syndrome,​another member told me that carbs are bad if you have ankleosing/​spondilosis which involves spinal pain,is this correct ??,i am  handling the pain at the moment but feel that my diet is exascerbating my condition,​the way i am seesawing from mild to extreme pain sounds like what i read about in sun flares and eating sea food or high "​D" ​ foods,but i am not to my knowledge guilty of either of these,i am starting to log my meals to see if i an see any connection, ​
 +
 +April
 +The pain has decreased a lot,neck still quite sore(acute pain)am doing all i can to stabilise my condition,​would like a "​little"​ more improvement before i start minocin,i noted some where on the site that lime patients are treated slightly differently to other th1 patients,​the reason ​ bring this up is because possibly 20 yrs ago i done a lot of horse riding,and after one outing in the bush ended up i the emergency DR surgery with my leg all red and infected
 +
 +Day 27
 +Had a fairly restless night,​plenty of pain in the usual places,​neck,​back,​left hip,left foot,​chest,​lower back,my left knee,my left foot is quite sore at the moment 6/10,my knee is about the same as my foot both are quite painful,my centre finger on my left hand has started to ache again,no nausea.no headache,no let up in pain,just keeps moving around(chest pain has improved greatly
 +
 +Day 29  BENICAR ​ 20MG  Q2HR,  MINO 25MG  Q24HR  taking some tramadol 100mg when nescessary
 +had a lot of pain in my left foot and left knee saturday might ,they are both playing up quite a bit lately,but on the other hand i have had a lot of relief in my upper torso,far outweighs any pain in my foot or knee,the knee is at about 8/10 in the pain leval (very sharp pain in the front centre)my left foot is also very painfull to put weight on,the fire in my chest has gone out but the skin is still sensative to touch,still have some pain in my lungs,and neck (reduced)but this did get *very*painfull last night(sun)when i left mino 30hrs,left hip varies in intensity ,but i am sure if i left mino this would flare up
 +
 +Apr 18th, 2005
 +NECK pain 90% gone (like heaven)am able to sleep,my left foot has been "​extremely painfull",​my knee is ok,have some pain in my back (lung area)my chest has been very sore from time to time,but slightly more to my right,is still quite painfull if i cough,​(sharp pain)i have been nausias all day ,and my nose has been quite watery,i do not have a cold,my left hand is ok,some pain in my right hip (tender spot to push) also have had some lower back pain,more on my left,have had some degree of difficulty passing water at times,no pain,but seems restricted at times,
 +
 +May 10th
 +Have had another day of the same,no let up in pain in my foot,was quite comfortable last night but had 100mg tramadol,​foot has ached badly all day(joints at base of toes)and along left side,left knee has some pain front centre,neck is still stiff,​painfull to turn,centre of chest (breastbone)pain varies can be quite acute,right index finger sore in centre joint,some left hip pain at front has been there for quite a while(not severe)all in all am not getting any noticable relief at the moment,it has realy got a hold on my left foot,can not walk without crutch
 +
 +May 15th
 +Still having severe pain in my left foot (joints at the base of the toes)and also haff way down left side of foot (bone inside swolen)my left knee has varying amounts of pain,​nowhere near my foot pain but painfull none the less,i still have pain at the base of my scull on both sides and have been told there are a lot of lymph nodes there,this may explain why i am having so much trouble in this area?my left wrist has occasional sharp pain when moving,my right index finger is getting worseis noticably more swolen than my left finger,my chest has settled a lot but is still sore(not painfull)the top of my head feels sensative to touch,all in all my herx seems to be progressing slowly at this stage,back to work tomorrow ,see what this week brings,do not know what else to do to slow herx,
 +
 +
 +May 30th
 +Have had the weekend at home,did not get any let up in symtoms,​stayed in bed all weekend,​left foot is still inflamed at the bottom of all my toe joints,​includng my big toe,the whole foot is tender,​there is a noticable lump on the left of my foot about a quarter of the way up from the heel,this is also very painfull,my chest ib painfull in the centre,​although this seems to be varying in intensity,​my knuckles in my left hand stiffen up from time to time,yhe base of my scull on both sides is still giving me hell from time to time,the pain is always there if i move the wrong way or even when turning in bed,i have to take it verrry slowly,​knees feel ok,slight tender spot on left hip bone front,my head feels very sensative and sore,the skin is on edge,as is the skin on the centre of my chest,my foot felt a lot more comfortable this morning (still using crutches)but as the day wore on it started to ache again,but it was nice to have some reprieve from the constant pain
 +
 +June 14th
 +
 +BEEN A FEW DAYS SINCE MY LAST REPORT,HAVE HAD SOME DIFFERENT SYMTOMS,THE PAIN IN MY LOWER SCULL ON BOTH SIDES INCREASED MARKEDLY,I ALSO HAD A RE OCCURANCE OF PAIN IN MY LEFT LUNG BEHIND MY SHOULDER BLADE,MY LEFT HIP AT THE FRONT ALSO WA TENDER,​SEEMS AS F I AM HAVING A MINOR FLARE IN MY SYMTOMS,MY LEFT FOOT HAS ALSO EXPERIENCED PAIN ON THE RIGHT SIDE JUST UNDER THE ANKLE BONE,THE WHOLE FOOT IS VERY SORE NOW ,BUT THE TOES SEEM TO BE NOT QUITE SO ACUTE AT TIMES,I M NURSING THM AS MUCH AS I CAN,AND LATELY AM ABLE TO MASSAGE THEM LIGHTLY,​HOPEFULLY THIS MAY HELP MOVE THE TOXINS,THE CENTRE OF MY CHEST ALSO HAS EXPERIENCED A SLIGHT INCREASE IN PAIN ,HAD QUITE A SEVERE HEADACHE FOR ABOUT THREE DAYS WHILI I SEEMED TO BE FLARING,I THINK MAYBE I ATE SOMETHING I SHOULD NOT HAVE,WAS TEMPTED BY A JUICY BEEF BURGER IN A WHIT BREAD ROLL,DO NOT KNOW IF THIS WAS THE CULPRIT ​ BUT MY INCREASE IN SYMTOMS SEEMS TO COINCIDE WITH ABOUT THIS TIME,MY SYMTOMS SEEM TO BE EASING BACK TO WHERE THEY WERE LAST WEEK GRADUALLY,
 +
 +Foundation Staff reply
 +Most meat has significant quantities of Vit D. It is in the feed supplements,​ and especially bad in cattle which are not '​free-range.'​ There is a US Patent which says that beef is more tender if the animal is injected with high dose Vit D just prior to slaughter - so you always run the risk that this procedure has been followed in higher-grade beef cuts.
 +
 +The flour in the roll may have been fortified with Folic Acid.
 +
 +The sauce may have contained Monosodium Glutamate.
 +
 +You may have had a pickle which had been processed with the coloring Yellow #5 (E103)
 +
 +July 5th
 +SINCE i last posted ​ i have been having a pretty rough time of it,did not get any descent sleep all weekend,had extremely painful left foot,the pain has now spread around my ankle(side and front)and i also have a dull ache in my bone that goes up my leg on the outside,​this is no problem pain wise but it is new,the pain in my foot n the other hand is very intense,my right foot is also experiencing some strange sensation on the surface of the skin in the area of the arch,my left  hip is still sore  to varying degrees,​sometimes quite painful,the left lung area also has some pain if i take a deep breath,my chest s not so bad,but the skin is still sensitive,​my right index finger froze up the other day and it was too painful to move,but this has settled some now ,but is still swollen,​the ​ glands in my neck have also been affected,​all in all i seem to be having quite a flare,am not sleeping very well,lucky to ge 4 hrs per night,i am also getting an ache right up the length of my left leg in the bone it seems can not think of anything else at the moment,but i am experiencing some new symptoms.the pain moving up my ankle i think is a good sign
 +
 +August 29th
 +FOOT PAIN SEEMS TO HAVE REACHED A POINT WHERE IT IS NEITHER GETTING BETTER OR WORSE,STILL PAINFULL TO WALK BUT COMFORTABLE AT NIGHT,I HAVE STARTED CLINDY TODAY 33MG FIRST DOSE WILL KEEP YOU INFORMED WITH MY PROGRESS,I AM STILL HERXING IN MY RIGHT INDEX FINGER ALSO,MR WRIST SEEMS TO HAVE SETTLED,​THIS WAS QUITE PAINFULL TO TURN  AND I COULD NOT TRUST MYSELF TO PICK  ANYTHING ​ AS MY HAND WOULD GIVE WAY WITH THE PAIN(SEEMS BETTER NOW)I HAVE HAD SOME TWINGES IN MY LEFT HAND (FINGERS)AND ALSO MY RIGHT HAND,MY TAIL BONE IS STILL SORE,    ​
 +
 +September 24th
 +LAST WEEK I HAVE INTRODUCED QUERCETIN AND ALSO AM ALTERNATING MINOCIN AND AKAMIN (A GENERIC BRAND OF MINOCYCLIN AVAILABLE IN AUSTRALIA)I HAVE EXPERIENCED SOME SEVERE HERX SYMPTOMS IN MY BREAST BONE AREA ,A REPEAT OF EARLIER SYMTOMS WHEN I FIRST STARTED THE PROTOCOL,MY FOOT IS STILL QUITE SORE AS IS MY TAIL BONE AND INDEX FINGER R/HAND,I AM STILL VERY RESTLESS AT NIGHT AND MY BODY TEMP SEEMS QUITE HIGH ALL THE TIME,I ALSO STILL HAVE A TENDER SPOT ON THE CORNER OF MY HIP ,MY NECK AND SCULL PAIN SEEMS TO HAVE ALL BUT RESOLVED ITSELF,THE PAIN IN MY FOOT SEEMS TO BE MORE IN THE CENTRE AREA OF MY FOOT BETWEEN THE TOES AND MY ANKLE (THE MAIN BULKY AREA ,I SEEM TO BE EXPERIENCING MORE HERX SYMPTOMS SINCE INTRODUCING CLINDY AND POSSIBLY ALTERNATING BRANDS OF MINOCYCLINE,​
 +
 +October 10th
 +SYMPTOMS HAVE GENERALLY DETERIORATED,​LEFT FOOT PAIN HAS INCREASED,​EXTREMELY PAINFUL TO WALK EVEN WITH CRUTCH,THE ARCH ON THE TOP OF MY LEFT FOOT IS ALMOST TOO PAINFUL TO TOUCH,THE SKIN IS VERY SENSITIVE TO TOUCH,AS IF BURNT SKIN,BUT THEN THERE IS ALSO PAIN ON MY BIG TOE JOINT AND SWELLING,​THE LONG BONE THAT EXTENDS UP THE UPPER ARCH OF MY FOOT FROM MY BIG TOE IS ALSO EXTREMELY SENSITIVE,​MY TAIL BONE IS STILL SORE,MY RIGHT INDEX FINGER IS  SORE AND SWOLLEN.I AM EXPERIENCING PAIN IN MY LEFT LOWER RIB CAGE AND ALSO MY BREAST BONE,I HAVE HAD SOME PAIN IN MY STOMACH ALSO,CAN NOT THINK OF EVERYTHING BUT THERE IS NOT MUCH THAT IS NOT ACHING,BUT MY FOOT S BY FAR THE WORST,​SYMPTOMS HAVE DETERIORATED SINCE INTRODUCTION OF CLINDY,HAD A ROUGH WEEKEND ,GLAD TO BE BACK AT WORK MONDAY ,AT LEAST IT TAKES MY MIND OFF THE PAIN ,MY BODY STILL BURNS (RADIATES PLENTY OF HEAT)CAN NOT BEAR TO PUT MY FOOT UNDER THE BLANKETS AT NIGHT AS PAIN INCREASES WITH HEAT
 +
 +2006 Jan 17th
 +HAVE DEVELOPED SOME SORENESS IN THE LOWER SECTION OF MY SPINE ABOUT 1/3 OF THE WAY UP VERY TENDER TO PUSH ON,MY COXIC BONE SORENESS HAS DECREASED TO THE POINT IT IS BARELY NOTICABLE,​HAVE A SORE SPOT ALSO JUST ABOVE MY ANKLE BONE ON MY RIGHT FOOT,MY LEFT FOOT HAS AT TIMES FELT ALMOST NORMAL(ALMOST AT TIMES!)HAVE HAD SOME CRAMPS IN MY RIGHT FOOT ESPECIALY,​AND SOME SORENESS IN THE TOES AT TIMES  (NOTHING LIKE I HAD IN MY LEFT FOOT) AM STILL GETTING PAIN IN MY ABDOMIN AND GROIN AREA (BEARABLE),​SHARP PAIN ON THE RIGHT SIDE WHEN I MOVE MY LEG TO GET UP OR OUT OF MY CAR,MOST OF THE ABOVE SYMTOMS ARE REASONABLY NEW AS SOME OLD ONES HAVE GONE,AND THIS I FIND VERY ENCOURAGING,​STILL GOT SOME SKIN ITCHING,​KNEE SORENESS SLIGHTLY LESS  THATS ABOUT ALL FOR NOW
 +
 +Jan 30th NOT MUCH NEW HAPPENING AT THE MOMENT,LEFT FOOT STILL IMPROVING,​HAVE HAD SOME RETURN OF SOME SMALL LESIANS IN THE INNER PART OF MY RIGHT EAR THE PAST COUPLE OF WEEKS,SOME DISCMFORT IN MY KNEE JOINTS,AM STILL EXPERIENCING GROIN PAIN ON BOTH SIDES,AS WELL AS SOME PROSTRATE SYMTOMS,​LOWER BACK STILL HAS SHARP PAIN WHEN LAYING DOWN (MAKES IT DIFFICULT TO TURN)GENERALLY STIFF AROUND THE LOWER RIB AREA,NOT MUCH FATIGUE LATELY,BODY TEMP STILL O,K AT NIGHT
 +
 +WILL BE INCREASING MY CLINDY TO 150MG Q48HR TOMORROW FOR THE NEXT COUPLE OF MONTHS,​HOPEFULLY WILL GET ENOUGH HERX TO BE TOLERABLE
 +
 +Jun 22nd,
 +PUSHED MYSELF A BIT TOO MUCH AT WORK I THINK,BODY IS HAVING ENOUGH TROUBLE COPING WITH PROTOCOL ET ALONE WORK 70 TO 80 HRS A WEEK,GOT A BIT TOO MUCH,ANY WAY FEELING A BIT BETTER NOW,GETTING PAIN IN MY KIDNEY AREA ON BOTH SIDES FROM TIME TO TIME SEEMS TO ALTERNATE,​FEET STILL PAINFUL IN THE JINTS IN THE MORNING,​STILL GETTING VERY HOT WHEN I STAY ON THEM FOR A WHILE,​ALMOST BURN,THIS HAS BEEN A PROBLEM FOR YEARS,AS SOON AS I PUT THEM UP(ELEVATED)THE PAIN ALTERS ALMOST IMMEDIATLEY,​THE HEAT SEEMS TO AGGRAVATE THE CONDITION,​THE COLDER THE TEMPERATURE THE LONGER I CAN STAY ON MY FEET WITHOUT BECOMING PAINFUL,​HAVE TAKEN MAGNESIUM FOR MY CRAMPS ​
 +
 +October 13th
 +STILL GOT MY COLD,CAME BACK AGAIN AND SEEMS TO BE TAPERING OFF AGAIN ,BACTRIM SEEMED TO AGRAVATE MY COLD,SEEM TO BE FELING A BIT BETTER SINCE STOPPING BACTRIM AND CLINDY,​SPINE PAIN GONE NOW,GOT QUITE A LOT OF PAIN N THE RIGHT LWER PART OF MY RIB CAGE AT THE BACK,VERYYY SORE WHEN I TWIST,MY SLEEP HAS BEEN TERRIBLE FOR WEEKS LATELY,HAVE BEEN GETTING UP "​ABSOLUTELY STUFFED"​AND DRAGING MYSELF TO WORK,​FALLING ASLEEP ON DUTY,FEEL LIKE I HAVE BEEN RUN OVER BY A TRUCK,HAVE BEEN FEELING QUITE DEPRESSED LATELY ALSO,HAD SOME CHEST PAIN THIS MORNING,​FAIRLY SEVERE IN FRONT SLIGHTLY TO THE RIGHT,MY LEFT SHOULDER IS SLIGHTLY LESS PAINFULL,​THE PAST COUPLE OF WEEKS THERE HAS BEEN A SORE BONE PROTRUDING SLIGHTLY AT THE TOP OF MY LEFT SHOULDER THIS HAS BEN QUITE PAINFULL
 +
 +WENT TO THE SKIN CANCER CLINIC AND HE HAS DIAGNOSED THE SMALL LESION THAT I HAVE BEEN COMPLAINING ABOUT AS A CANCER AND WILL BE REMOVING IT AND TAKING A GRAFT FROM MY SHOULDER IN A COUPLE OF WEEKS TO FILL THE HOLE 
 +
 +October 28th
 +HAVE BEEN TO REMOVE CANCER ON THURSDAY,​SPECIALIST HAS RESERVATIONS NOW AND HAS TAKEN BIOPSY TO CONFIRM HIS DIAGNOSIS,​SEEMS ON THIS OCCASION IT IS NOT AS BLACK AND WHITE AS BEFORE,​POSSIBLY THIS ITCHING THE PAST 10 MONTHS ON AND OFF IS A HERX REACTION
 +
 +December 2nd
 +I AM STILL EXPERIENCING LOWER INTESTINAL CRAMPS ,THE SLIGHTEST STRESS OR EXERTION SEEMS TO BRING ON AN ATTACK,HAVE HAD 5 DAYS OF THIS,​MYLANTA WAS GIVING SOME RELIEF BUT I AM NOW USING GASTRO STOP AND THIS SEEMS TO HAVE GIVEN SOME RELIEF
 +  ​
 +MEDS  MINO 100MG Q48HR  BENICAR ​ 40MG Q6HR ZITHROMAX 1/8  500MG TAB Q 48HR   CYCLE 7 OF ZITH
 +
 +SX RIGHT KNEE HAS VERY SHARP PAIN INSIDE,​ALMOST UNBERABLE TO PUT WEIGHT ON MY LEG,LEFT SHOULDER ALSO CATCHING INSIDE WHEN ROTATED
 +
 +2007
 +February 17th
 +NOTICING ​ BRAIN HERX ON DAY OF CLINDY DOSE,​SETTLES BY NEXT DAY.
 +  ​
 +  ​
 +MEDS BENICAR 40MG Q6HR ZITHROMAX 1/8 500 MG TAB Q 11DAYS MINOCIN 100MG 48HR CLINDY 65. MG Q48H
 +
 +                                  CYCLE 17 day 3
 +Am experiencing pain in left kidney towards front,and right kidney at rear,had a lot of pain in my right shoulder blade area last night,some pain in the front of my chest,​feling very fatigued lately,some of the joint pain has eased,​inflamation has subsided a bitpain in right side of neck has eased,wrist pain has eased,right knee pain has eased a bit ,generally inflamation is down but faTigue is up,still hot at night under the sheets,very stiff and achey in the mornings need hot shower to get moving,had to have a naptoday was falling asleep at work,​quercetin is helping me to sleep,was having great difficulty sleeping a couple of weeks ago pre quercetin ,pain in right shoulder blade area extremely sharp when inhaling ​
 +
 +March 24th
 +herx reaction at the moment seems to be quite moderate,​severe lung pain and spinal pain easing,body temp still hot at night,seem to be burning up at times,my partner sleeps on one side of the bed with blankets and i sleep on the other side with one thin sheet half on me and still feel hot at times,but not in pain except feet burn quite a bitstill,!!
 +
 +Have not reported this before but i seem to be growing hair on my head WHERE NONE HAS EXISTED FOR QUITE SOME TIME,I HEARD the protocol made you feel young again but did not expect this
 +
 +
 +May 28
 +Have had A FAIR AMOUNT OF ITCHING LATELYLEFT SHOLDER STILL TRYING T SEIZE IF NOT WORKED,HAVE BEEN GETTING SOME SIMLAR PAIN IN MY RIGHT ARM AND ELBOW,LOWER LUNGARA BOTH SIDES SIL SORE,WAS COMPLETELY STUFFED ON SATURDAY (DAY 6)HAD TO HAVE A NAP IN THE AFTERNOON COULD NOT CONTINUE TO FUNCTION,​HAVE MILD HEAD ACHE CONSTANTLY LATELY,FELT QUITE GOOD TODAY,LAST BIT OF COLD ALMOST GONE,HAVE SOME PAIN IN THE CENTRE OF MY CHEST AGAIN,SARP PAIN SEEMS DEEP INSIDE BREAST BONE,NECK TENDONS STILL SORE,NOT SLEEPING WELL,BODY TEMP SEEMS TO HAVE COOLED A BIT,HAVE HAD SOME SHOOTING HEART PANS,THE SMALL LESION IN MY RIGHT EAR THAT  WAS GOING TO HAVE OPERATED ON (BUT DECIDED TO CANCELL OP)SEEMS TO HAVE CLEARED AT THIS STAGE, KEEP FINGERS CROSSED THIS WAS THE RIGHT DECISION,MY DOC SEEMS TO THINK THERE IS NO REASON TO PANIC OR OPERATE ​
 +
 +July 19
 +MEDS BENICAR 40MG Q6HR ZITHROMAX 3/16 500 MG TAB Q 11DAYS MINOCIN 100MG 48HR CLINDY 112. MG Q48H
 +
 +                                  CYCLE 30 day2
 +Have ceased official work 1.5 weeks now,good to have some time to myself,have started swimming again lately (when sun goes down)need to keep motivated,​have had a lot of upper back pain the past couple of days,left side behind heart especially,​had to get up at 3.30pm and have hot shower and panadole to help relieve pain ,could not sleep,​very!!! sharp nerv type pain possibly radiating from spine,spine has had some inflamed sore sections lately,​lower back/kidney pain/left side more so/left shoulder still giving trouble,​swimming should help this problem,​some tenderness on right side of neck when pressed lightly,​swimming may be helping circulation and possibly helping herx???
 +
 +Just a short note,have been eating some yoghurts lately and they seem to have had an adverse effect on me ,had unbearable pain behind my hear last night,had to take some quarterzone to relieve pain,also took tramal and panadole,i recall this has also happened in the past but i thought i would possibly be o.k at this stage (lucky i had some prednisalone as io could not bear the pain it was so intense
 +
 +2008 April
 +
 +just a  short note,i went to my surgeon that repaired my broken knee 5 years ago to book in for surgery to remove two titanium plates in my leg,i particularly ASKED HIS OPINION on the amount of arthritis present at the site of the multiple fracture he repaired,he said he would have expected to see a lot of arthritis at the site but was pleased to see there was very little if any arthritis at my knee joint,my ankle which was also fractured at the time and went un noticed untill about 3 months after my knee repair has obvious sighns of arthritis at the fracture site ,so a bit of a mixed bag,no arthritis at knee but arthritis obviously evident at ankle 
 +
 +2009 January
 +have been off demi and zith a few days now,have noticed a 80% improvment in the pain in my left hip(all but gone)looks like this was herx,also seems to be some improvement in the pain in the front of my groin,which was at the sight of my hernia i had repaired last year,anyway at this time only positive pain improvement,​ THROAT still Phlegmy
 +
 +(@4 yrs 10 months on MP) i survived the operation,​could not handle the intravenous pain meds they made me sick,so i tried tramocol and then panadol,​have had stomach pain for about 2 days now ,taking mylanta to stop pain spasams,​starte benicar this morning again,was getting sharp shooting pains up in my sternham and across my chest,has eased now
 +
 +I questioned Doc regarding evidence of arthritis at the location of the plates and pins and he told me there was none,(on my previous visit to see him he had told me that even though no arthritis was evident on the x rays ,he was fairly certain this would not be the case when the plates were removed)surprise for him ,but he did not make much of it
 +
 +As for the condition of my bones,i did specifically ask him to pay attention to the condition of them and if he found them fragile or unusual in regards to the noem,again he commented all seemed good
 +
 +Jan 23rd, 2009  have been out of hospital 7 days now,added demi back two days ago,no adverse herx,added zith back today ,will let you know how it goes,am seeing chiro again today,​apparently my hip joints are quite badly affected by arthritis and in his words almost fused ,had a lot of severe pain in nerve at back of left hip,his manipulating has eased this a lot ,and he tells me i need to keep going for quite some time to get some movement in the joint and stop it seizing all together
 +
 +May 10th
 +,removing zith and bactrim has decreased herx to a large degree,​right knee which had plates removed continues to improve,can walk 5klm no pain now,before was stiff next day and painful,but there is currently no pain when walking and no stiffness in the morning,the removal of the plats played a big part ,but there has also been a major improvement since i ceased the anti biotics
 +
 +,seem to have my old knee 95% back at the moment it realy feels great,​considering the break was the worst the surgeon had seen in about 20 yrs,the degree of healing has been amazing and i am sure a lot is a result of the protocol,​the surgeon kept on insisting there would be arthritis in the joint even though it did not show in the exray,and when the plates were removed he assured me there would definatly be arthritis evident,​well guess what NO ARTHRITIS there either ,hard for him to admit i had to prise it out of him after the operation,​they don"t like to be proved wrong,but in my case the degree of healing has been beyond what he ever expected
 +
 +My local Gp has finally expressed interest in the protocoll and is gointg to have a look at the prague conference dvd 
 +
 +June 9
 +my lungs were on fire and the tablets seem to have helped,my last cold last year also ended up being a long saga(MONTHS)and i was dreading this year,the only difference between this year and last year is that if anything i have more sun exposure this time
 +
 +I think i would be hospitolised if i did nothing,i did take Benicar sub lingual on quite a few occasions as well as q4hrs and made no difference ,just seemed to be getting worse and coughing up discusting green flem,will see my doc when i get home
 +
 +Colds have never been a problem for me before ,and last about 2 weeks as you say,i felt this one coming on three weeks befor i left on my trip,went on a outing to the city ,and on the way back felt the familiar irritation at the back of my throat,and that was it
 +
 +Resorted TO Tamiflu as anti biotics were not an option,​purchased products to loosen up chest flem,
 +
 +Sept 14
 +Just a short note, have been experiencing some pain in my upper back and lung area 6/10 , also quite a lot of pain in my kidney area radiating across to both sides of my lower back 6/10,seems to reduce when i get up and about , and increases when i am less active at night, still have some phlem problem , but not interfering with exercise regime , swimming alternate days and walking also , herx seems to be increasing since stopping Mino
 +
 +2010
 +Feb
 +Seem to be having massive herx ,may have introduced zith at too high a leva
 +
 +Sept
 +Am still experiencing quite a lot of lower back pain7/​10,​take anti informatory to help on a daily basis, sometimes pain gets toooooo much and i need 4 mg quarterzone,​seems to settle issue for approx 1 week,no longer going to chiro or physio,​swimming 5/6 days a week, Off Zith ans Clindy for about a month now ,am also getting pain in spinal cord and upper back area (lungs) quite lethargic at times ,will go to doc this week to get some Liver and Kidney function tests done 
 +
 +Nov
 +sun has not been effecting me anywhere near as much as it used to,going out again this morning,​Sulphur (msm)is the main ingredient in Garlic and horse radish that makes it do its job,does wonders for your body ,can be taken with DMSO apparently with even better results
 +
 +Don't think hospital will be necessary now,if things keep improving as they have been,it realy has been eye opener this Nutrition exercise,it all started when i started looking for treatment for my Brothers lung Cancer,and came to realise LACK OF NUTRITIONAL Minerals combined wit the TOXIC Chemicals we consume play a massive part in this disease process also
 +
 +Lungs are still a problem ,but the back looks like it may be OK 
 +
 +2011
 +Jan Benicar 20mg q8hr Minocin 100mg q72hrs ​
 +,lower back pain has decreased significantly with the use of Sulphur /MSM ,CAN NOT BELIEVE THE DIFFERENCE THIS HAS MADE,AM KAYAKING TWICE A WEEK NOW EARLY MORNINGS FOR APPROX 1.5 HRS EACH DAY ,ABOUT 8K-10 KLM  ,I WOULD HAVE NEVER BELIEVED THIS 2 MONTHS AGO , MY FEET ARE STILL GETTING HOT, LUNG INFEVTION ALL BUT GONSun sensativity minimal,not reacting as i used to ,paddle early morings in daylight ,6am to 7.30am ,but no negative noticable herx,wear noirs and protective clothing,​legs partly exposed,​upper body wear thyermal top and spf 50 shirt and Nizerol cream on face and gloves on hands 
 +
 +Feb
 +have decided to up Benicar back to 40mg q8hr , at this early stage it seems to have had some effect on lessening burning feet problem.
 +
 +April
 +Have another issue at the moment ,(never seems to stop) had an inflamed spot on my left arm below my elbow for the past three months or so ,about 1/4 round and red ,anyway it did not seem to want to heal so i put some BLACK SALVE (cansema on it and it reacted immediately,​(it does this when it comes in contact with cancerous cells) . No cancer no reaction!!! pain initially radiated down my arm to my wrist for a few hrs ,then left a bit of a ulcerated sore,am trying to heal it now,played with the scab after showering today and locaed a white grissely centre core going down into my flesh at the centre of where the main scab was ,applied another dose of Black Salve today and it is stinging like hell at the moment ,and the area is swelling, will remove salve later today and clean up and try to prompt tissue to heal , would not heal before
 +
 +had issue with BCC  a few yrs ago and had half my right ear hacked up by the specialist,​and if they saw this ,i am sure they would make a mess of my arm
 +
 +29 April
 +all is going well ,the big hole i had in my arm two weeks ago has almost dissapeared,​just about healed before my eyes, used DMSO, ALSO I BELIEVE SHEET ACCELERATED HEALING PROCESS, MY SISTER SAW THE WOUND after i applied the Black Salve two weeks ago and can not believe how fast the tissue has repaired,
 +
 +Energy levals very good,no pain ,back getting better and better, Feet not burning  ​
 +
 +
 +May
 +Benicar 40 mg q8hr Mino maybe twice a week
 +
 +One thing about the Twice a week Mino, previously i needed more regular ​ Mino to palliate symptoms (i mean pre MP) am slowly trying to wean off
 +
 +Previously stated feet burning gone, maybe i was a bit hasty , but definitely improved greatly:)
 +
 +Lower back pain comes and goes,am not sure that this is entirely due to impinged nerve , went to hospital on the weekend with abdominal pain,​thought it may have been Appendicitis ,but they seem to think it was muscular,​but at the same time they rang me next day to say they were not real impressed with my Kidney function tests , and suggested i see my local Doc to discuss further ,there were some other issues apparently also,all in all they called to see if i was OK,as they could not process my blood that night , my fingernails were almost pure whit a few months ago ,and when i looked that up on the net ,it indicated renal problems, They are not so bad now ,but were worryingly almost entirely white , also the Doc from the hospital asked if i had ever had any Kidney Disease,not the first time i have been asked this
 +  ​
 +July
 +Meds Benicar 40mg q8hr Mino 100mg once a week
 +Back pain has eased quite a bit with quarterzone injections,​currently have quite a bit 6/10 pain left side of back behind lower rib cage , came on yesterday ,dont know what it is ,but seems like some sort of flare, generally not feeling too bad, other than lower back probably feeling pretty good actually, energy levels quite good ,weather changes still seems to have quite an effect on my joints ,had quite a lot of pain in lung area last week when weather changed,but that has gone now, seem to get these painfull flares in my lung behind shoulder blades ,take your breath away type of pain ,very acute ,stays for a few days and then moves on ,not unlike the pain in my left rib area now
 +
 +
 +
 +December ​
 +i use DMSO , SULPHUR AND COLLOIDIAL SILVER 60PPM ,DONT THINK ANYTHING WILL SURVIVE THAT
 +
 +using dmso topically to try to limit risk of infection
 +
 +2012
 +Jan
 +
 +short update ,still experiencing lower back pain ,have been trying acupuncture(once so far) no relief yet ,pain seems to move around spine a bit .mainly lower level, L3,L4,L5, BUT BY THE SAME TOKEN ALSO MOVES TO UPPER BACK LUNG AREA IN ADDITION TO LOWER BACK AND ALSO RIGHT kidney AREA ,BEHIND LOWER RIBS , HAVE ARRANGED TO SEE PAIN SPECIALIST AGAIN WITH THE VIEW TO HAVING MORE INJECTIONS IN THE L23 LEVEL,THE FUNNY THING IS I GET CONTRADICTING ANALYSIS OF THE MRI AND XRAYS, NEUROSURGEON SAYS BACK IS NOT THAT GOOD ND HAVE EVIDENCE OF STENOCIS AND BULGING DISCS,BUT PAIN SPECIALIST LOOKS AT SAME IMAGES AND SAYS THERE IS NO EVIDENCE OF STENOCIS AND HE WISHES HIS BACK WAS IN AS GOOD CONDITION AS MINE (REFERRING TO CONDITION OF DISCS )SO I DONT KNOW,​FURTHERMORE PAIN SPECIALIST(APPROX 40YRS EXPERIENCE) SAYS ,NO WONDER NO SURGEON WILL GO NOWHERE NEAR YOUR BACK WITH A KNIFE
 +
 +I was introduced to a old chinese Dr yesterday by my Bank Manager, we have an area in Perth here that is like a small China Town
 +Anyway when i told her about my problem she said easy fix $350 ,fix in 20 mins ,i was surprised at the price ,but she seemed very convincing and guaranteed it would fix me
 +We went out the back and she proceeded to karate chop my lower back by cupping both hands together ,and applying some ointment ,after about 10 mins ,she said all fixed no more problem
 +She sent me home with some herbs to boil up and drink the juice for the next few days ,she was refering to some very old notes in some books handed down in her family ,i boiled up the brew and drank it yesterday (am still alive) and pain has reduced approx 80% , there is still some discomfort ,and i dont know how long this will last , i have not paid her and she insisted if it was not fixed the next treatments would be free of charge ​
 +
 +At least this is better than Cortisone injections and sedation ,and a expensive hospital visit, as i had last time ,she seems to be going to the root of the problem,​rather than supplying pain killers only
 +When i look at the xrays of my spine myself there appears to be no significant compression of any particular disc ,and the spacing between the vertebrae seem consistent ,on this basis i am cautiously optimistic that this may be an indicator that manipulation may be the way to go ,either with her slapping technique or orthopedic Dr /​experienced massage therapy
 +Furhermore her Herbs may be beneficial to my general health
 +
 +Feb 26th, 2012
 +All is well in the health department as far as reiters syndrome symptoms are concerned ,no longer an issue
 +
 +Lung phlegm not also problem at the moment
 +
 +Lower back problem may be being exacerbated by an old horse riding injury ,have orthotic inserts made for my shoes ,one of my feet is leaning in putting pressure on my back, hopefully orthotics will help
 +
 +Feb. did not go on with Chinese meds .
 +But have been concentrating on low carb foods more protein and not much processed food,KEEP AWAY FROM REFINED SUGARS .
 +
 +June
 +Had a cancer removed from my left calf about three months ago ,left quite a big hole in my calf,still healing
 +No real arthritic problems
 +Sun sensativity not much of a problem ,do get some herx if i go out too much day after day in the sun 
 +Did not waste my time or money with biopsy,just applied Black salve(cansema) ,this takes out Melanoma and skin cancer by the roots,if there is no cancer present it does not react, i had a itchy dry piece of skin that kept growing back and irritating me ,a bit like a mosquito bite gets your attention,​it kept coming back(last 12 months only) so i applied the Black Salve ,pain and swelling went down below my ankle ,approx 6" below the obvious cancer site,hole was at least the size of a 5 cent piiece and very deep ,been 3 months now and still healing
 +
 +I had an experience a few years ago where i had a small BCC
 +ON MY RIGHT EAR,TO BE SURE THEY GOT IT ALL THEY HACKED OFF HALF MY EAR AND TOOK A SKIN GRAFT FROM MY CHEST AREA,HAD AROUND 60 STITCHES AND VERRYYYY PAINFULL,​TOOK ABOUT 6 MONTHS TO HEAL
 +i WAS NOT GOING TO FALL FOR THAT ONE AGAIN ( DID NOT KNOW ABOUT BLACK SALVE AT THE TIME ) AM SURE THAT HAD I DONE THE SAME HERE THEY WOULD HAVE REMOVED HALF MY CALF MUSCLE
 +
 +October
 +has been a while since i posted ,Back has been playing up again been back to Osteopath a few time and also massage clinic,​purchased an expensive massage device ,that may have aggravated the problem, still wearing orthotics,​pain is not as bad as it was at worst,at least i can sleep at night ,pain seems to move around my back at times,from one side to the other and also from top to bottom, probably some arthritic problem,​sometimes goes behind my left shoulder blade(painfull to breathe) then moves across to my right shoulder blade ,then down to my lower back again,​exercise can help ,but by the same token can also aggravate the situation , feel pretty exhausted lately most of the time .
 +Trying to get motivated to start swimming again,but last time i went to the pool i ended up with the flu again ,AND SEVERE LUNG INFECTION .Just getting over it now ,since i had Pneumonia about 10 yrs ago,as a result of aspirating after an  operation ,i seem to get chest infections very easily (bloody anesthetists going to sleep on the job)
 +Had some pain in my joints lately also ,situation not looking too good,i feel the root cause of my problem is still there after all this time
 +Have been trying some Borax lately,​maybe that is causing a Herx reaction,​dont know   As mentioned before trying to eat healthy ,dont drink Alcahol ,coffee rarely ,alkaline water most of the time 
 +
 +Dec
 +Have cut out Benicar and Mino , Benicar about 1 month ago,blood pressure has gone back to 120/75 and back pain is improving by the day
 +,i assume due to my increased blood pressure 120/​80now,​arms do not get so fatigued when swimming
 +
 +2016
 +April
 +I got seriously ill ,after a trip to the Philippines ,all the symptoms i had before ,aching painful joints all over ,could barely move
 +My local doctor recommended Methotrexate and anti inflamatory meds ,said i probably had Fibromyalgia
 +I was suicidal ,with pain
 +After analyzing the lead up to my problems , i remembered i had bed badly bitten by bed bugs in the Philippines .
 +I suggested a Lymes test from my doctor and as suspected it came back negative ,as i knew it would !!!!
 +Fortunately i had sent a sample of saliva and hair to a lab in America at the same time
 +The results came back positive with 4 strains of Lymes ,and also pointed out my first infection was around my late twenties
 +Most recently infected by Bed Bugs it said 
 +
 +2018
 +since the last time i posted , i have been to Malaysia for 2 rounds of Hypothermia treatment ,with multiple IV Antibiotics
 +This saw the removal of parasites from my stool (yuk)
 +Symptoms dissapeared while i maintained Anti Biotics ,and there were plenty
 +But i do not like the damage they are doing to my gut
 +So i went back to Ozone and herbal suppliments and organic plant based diet
 +DURING my research i discovered Heavy Metals mimics Lymes symptoms *(and i have been a mechanic for approx 40 years )
 +So had hair analysis done and my chromium levels are off the scale , also mercury too high ,and copper
 +Anyway i just started heavy metal chelation therapy (edta and glutathion for now)
 +This may have played a big part in crashing my immune system
 +Thats where i am at now ,detoxing to the max ,it will take a couple of years i think ,but it makes sense to me ,and something i never thought of before ​
 +
 +
 +i believe the heavy metals compramised my immune system and made me susceptible to infection.
 +As for my health at present i am improving every day ,at the moment bouncing out of my skin
 +just hope it keeps going
 +i am eating all organic ,also doing Flax and cottage cheese (Budwig cancer cure) Rebounding maybe 1 hour a day ,and also going to sauna every second day
 +doing daily coffee enemas ,to move poisons.
 +taking charcoal ,bentonite clay and zeolite to catch mould and metals as the progress down to large intestine , to stop them being re absorbed .  ​
 +
 +
 +
 +
 +
 +$$$$$
  
 possible content https://​www.marshallprotocol.com/​forum35/​2852.html Peter (vda) p5, 7 10, 12, 16-17BCC, 19, 22, 4 [**p__27__** no sign of reA at post-op (4 yrs on MP)]  29, __39__**Bold ​ possible content https://​www.marshallprotocol.com/​forum35/​2852.html Peter (vda) p5, 7 10, 12, 16-17BCC, 19, 22, 4 [**p__27__** no sign of reA at post-op (4 yrs on MP)]  29, __39__**Bold ​
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