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home:diseases:fibromyalgia [01.03.2012]
127.0.0.1 external edit
home:diseases:fibromyalgia [02.28.2019]
sallieq [Managing symptoms while on the Marshall Protocol]
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   * **Cognitive dysfunction** – Cognitive dysfunction (also known as brain fog) is the loss of intellectual functions such as thinking, remembering,​ and reasoning of sufficient severity to interfere with daily functioning. Patients with cognitive dysfunction have trouble with verbal recall, basic arithmetic, and concentration.   * **Cognitive dysfunction** – Cognitive dysfunction (also known as brain fog) is the loss of intellectual functions such as thinking, remembering,​ and reasoning of sufficient severity to interfere with daily functioning. Patients with cognitive dysfunction have trouble with verbal recall, basic arithmetic, and concentration.
   * **[[home:​lifestyle:​exercise|Physical activity and exercise]]** –  The choice to exert oneself through physical activity or exercise should be made in the light of the stage of one's disease and the effect that extra activity has on the immune system. In different patients under different circumstances,​ exercise is capable of either suppressing or increasing the immune response. MP patients who can perform their activities of daily living while recovering on the MP are as fit as they need to be. Their focus should be in regaining their health with the MP. With improved health will come improved abilty to exercise and increase endurance.   * **[[home:​lifestyle:​exercise|Physical activity and exercise]]** –  The choice to exert oneself through physical activity or exercise should be made in the light of the stage of one's disease and the effect that extra activity has on the immune system. In different patients under different circumstances,​ exercise is capable of either suppressing or increasing the immune response. MP patients who can perform their activities of daily living while recovering on the MP are as fit as they need to be. Their focus should be in regaining their health with the MP. With improved health will come improved abilty to exercise and increase endurance.
 +
 +===== Data =====
 +
 +//from DJ in California//​
 +
 +<​blockquote>​Almost a year ago (February 2013)  I was on this discussion topic with others. I am retired and have a lot of time on my hands, so I did some work as a member who cares. ​ I have been waiting since August for the results of my 6 weeks of work to be released on this site, and have not seen anything.
 +
 +This is statistical data taken from the progress reports of you, the members of this forum. I do not know any of you and I read so many reports I could not tell any of you what has happened to anyone single person.
 +
 +My report is on SUBJECTIVE data, it is not based on any one measurable test or physical reading. It is based solely on the testimony of members who have used the Marshall Protocol.
 +
 +During the summer of 2013 I looked at 2,000 records of people using the Marshall Protocol.
 +
 +I eliminated all records that had less than 20 messages, as these were usually inquiries into the treatment without actual participation.
 +I eliminated all records from people who had been banned from the site.
 +I eliminated all records from Health Professionals who did not actually have disease.
 +I eliminated all records where I could not find a valid progress report.
 +This left me with 864 meaningful records.
 +
 +My method was to bring up a members progress report. I would make note of the major disease listed by the member. I would then page down to the last page of the progress report and find the last, or last meaningful reply and try to determine if the member was reporting improvement in health, a decline in health or worsening of symptoms. Sometimes this was just that the person said they felt better. Sometimes this was looking at the change in toleration numbers.
 +
 +I then determined that they were in some way reporting success on the protocol. Or they were reporting no success. In some cases I could not tell from what the person had written whether they had success or not.
 +
 +I am not expecting this data to stand up to the double blind studies of the professional scientific researchers. (I know what double blind studies are about, I was married to a cardio vascular PhD researcher for over 20 years. I have also been a subject in a double blind study, and am currently involved in one. I know how precise these must be.)
 +
 +We don't have a controlled study group here but we do have a lot of honest testimony from a lot of people who were very sick when they signed on to this site. Who took the time to make weekly or other periodic reports. Who have voices (your voices) to say this Marshall Protocol treatment works or does not work.
 +
 +I tried my best to be unbiased as I was expecting to see about a 20% improvement in health of members, or in other words a 20-25% success rate. I was intending to compare this to the 10% success rate I found done on the use of prednisone to treat Sarcoidosis. That double blind report shows that 10% treated with prednisone achieve remission. (BTW remission in Sarcoidosis as far as I can find out is measured rather subjectively)
 +
 +The following information is what I found:
 +
 +Fibromyalgia:​
 +53 members; 34 success; 6 no success; 13 unsure
 +
 +
 +Other Th1 diseases:
 +184 members; 110 success; 30 no success 44 unsure
 +
 +TOTALS: 864 members;573 report success; 119 report no success; and for 172 results are not clear.
 +
 +SUCCESS RATES:
 +Over all success rate 66.32%
 +Over all unsuccessful 13.77%
 +Over all unsure 19.91%
 +
 +
 +Fibromyalgia success 64.2%
 +
 +All Other Th1 disease success 59.8%
 +
 +</​blockquote>​
 +
  
  
home/diseases/fibromyalgia.txt · Last modified: 03.15.2019 by sallieq
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