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home:diseases:raynauds [01.27.2019]
sallieq [Notes and comments]
home:diseases:raynauds [01.27.2019] (current)
sallieq [Patient reports]
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 ===== Patient reports ===== ===== Patient reports =====
  
- +<​blockquote>​For a few weeks now, I've been noticing that my Raynaud'​s-type problems have diminished to the point of having (almost) completely vanished! I'm no longer as cold in the extremeties (fingers and toes) as I used to be! I often bike to work. It's been in the 30's Farenheit in the last couple of weeks or so in the mornings when I bike in so I wear the same gloves I have in past years. When the temperature used to be in the 40's before and I had the same gloves on, my fingers would be ice-cold - so would my toes. Now, in the 30's, my fingers and toes are just fine with the same gloves and shoes. I also find I dno't need to wear slippers in the house anymore. I went winter camping a couple of times with a friend over the last few years and my toes would always be ice-cold while he had no problem. Now I know why.  //Rico: 5 months on MP2006//</​blockquote>​
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-<​blockquote>​For a few weeks now, I've been noticing that my Raynaud'​s-type problems have diminished to the point of having (almost) completely vanished! I'm no longer as cold in the extremeties (fingers and toes) as I used to be! I often bike to work. It's been in the 30's Farenheit in the last couple of weeks or so in the mornings when I bike in so I wear the same gloves I have in past years. When the temperature used to be in the 40's before and I had the same gloves on, my fingers would be ice-cold - so would my toes. Now, in the 30's, my fingers and toes are just fine with the same gloves and shoes. I also find I dno't need to wear slippers in the house anymore. I went winter camping a couple of times with a friend over the last few years and my toes would always be ice-cold while he had no problem. Now I know why.  //5 months on MP Rico  ​2006//</​blockquote>​+
  
 Rico now writes "​although I had made some progress with that a few years back, it's much worse now. Not severely, but worse than it was." //hmmm// Rico now writes "​although I had made some progress with that a few years back, it's much worse now. Not severely, but worse than it was." //hmmm//
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 <​blockquote>​My Raynaud'​s is still retreating. ​ I've had my 4th dose of Mino and at the moment I'm typing sans gloves....again. ​ It is a very pleasant sensation. I am having very few herxes now.  Quite the turnaround from this time last week. I am having just some minor aches and pains and slight word retrieval issues, but my light sensitivity seems to be decreasing. ​ I just ordered the DVD's and I am hoping to spread them around. ​ I know like this is working. <​blockquote>​My Raynaud'​s is still retreating. ​ I've had my 4th dose of Mino and at the moment I'm typing sans gloves....again. ​ It is a very pleasant sensation. I am having very few herxes now.  Quite the turnaround from this time last week. I am having just some minor aches and pains and slight word retrieval issues, but my light sensitivity seems to be decreasing. ​ I just ordered the DVD's and I am hoping to spread them around. ​ I know like this is working.
  
-The Raynaud'​s aspect is particularly interesting to me because some of my friends who are on 200 mg of Mino bid (as I used to be!)say that the raynaud'​s is the last symptom to go.  ​2008 Elijuh 2 months on MP</​blockquote>​+The Raynaud'​s aspect is particularly interesting to me because some of my friends who are on 200 mg of Mino bid (as I used to be!)say that the raynaud'​s is the last symptom to go.  ​//Elijuh2 months on MP, 2008//</​blockquote>​
  
-<​blockquote>​Finger ulcers, a very common problem for 7 years after using a heavy in-line sander for a month, day in and day out, and triggered regularly by any form of chilling of limbs or body (Raynaud'​s comes to mind, but my dermatologist wouldn'​t go there) and that move very rapidly to bleeding cuts in something much less than an hour, went away almost immediately after starting the MP, except for one or two instances that had to be IP, as there was no chilling involved. ​ It has not returned this cold season yet, even tho I have chilled my fingers to an icy severe pain breaking up frozen hamburger. ​ //Cynthia S 1 yr anniversary post//</​blockquote>​+<​blockquote>​Finger ulcers, a very common problem for 7 years after using a heavy in-line sander for a month, day in and day out, and triggered regularly by any form of chilling of limbs or body (Raynaud'​s comes to mind, but my dermatologist wouldn'​t go there) and that move very rapidly to bleeding cuts in something much less than an hour, went away almost immediately after starting the MP, except for one or two instances that had to be IP, as there was no chilling involved. ​ It has not returned this cold season yet, even tho I have chilled my fingers to an icy severe pain breaking up frozen hamburger. ​ //Cynthia S1 yr anniversary post//</​blockquote>​
  
  
 Juliette starts MP 2006 with SYMPTOMS: ​ Raynaud'​s (10 yrs), peripheral neuropathy, migrating joint pain, food sensitivities,​ menstrual irregularities,​ swollen lymph nodes, photosensitivity Juliette starts MP 2006 with SYMPTOMS: ​ Raynaud'​s (10 yrs), peripheral neuropathy, migrating joint pain, food sensitivities,​ menstrual irregularities,​ swollen lymph nodes, photosensitivity
-<​blockquote>​ It's crazy cold here and my fingers are not blue! Usually at this time of year, the cold feels like it grips my veins and makes them go into spasms- leaving my fingers white, then blue. This has happened for at least 15 years. My body temperature regulation has improved tenfold! ​ Juliette ​ Jan 25th, 2014</​blockquote>​+<​blockquote>​ It's crazy cold here and my fingers are not blue! Usually at this time of year, the cold feels like it grips my veins and makes them go into spasms- leaving my fingers white, then blue. This has happened for at least 15 years. My body temperature regulation has improved tenfold!  ​//JulietteJan 25th, 2014//</​blockquote>​
  
  
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 Andreea, it is quite common to have many symptoms resolve in the first 1-3 years on MP,// what we think of as the 'low hanging fruit' that renewing immune activity has gone after//, followed 2 to 5 years later by intense immunopathology as immune activity really gets to work in difficult areas. ​ Hopefully in the early stages, one learns to manage herx, because for most people management becomes quite a challenge. ​ With heart issues, a reminder not to overdo anything just because of early gains. Andreea, it is quite common to have many symptoms resolve in the first 1-3 years on MP,// what we think of as the 'low hanging fruit' that renewing immune activity has gone after//, followed 2 to 5 years later by intense immunopathology as immune activity really gets to work in difficult areas. ​ Hopefully in the early stages, one learns to manage herx, because for most people management becomes quite a challenge. ​ With heart issues, a reminder not to overdo anything just because of early gains.
 +
 +<​blockquote>​My mood issues are better than ever. I'm back on C and no mood issues so far. My teeth are hurting again and my ears are ringing very loudly. I had almost no Raynaud'​s issues this winter. //Jon Paul Jones: 3 yrs on MP, 2012//</​blockquote>​
  
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home/diseases/raynauds.txt · Last modified: 01.27.2019 by sallieq
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