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home:diseases:reactive_arthritis [01.15.2019] – [Notes and comments] sallieqhome:diseases:reactive_arthritis [01.15.2019] – [Notes and comments] sallieq
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 Day 17 Day 17
- Had a very painful night last night,the pain in the left of my neck diminished about 80%,still had some pain on left side of neck just above collar bone but at rear of neck,had breathtaking pain on right side of neck at the base of my scull,could not lift my head had to lift my head physically with my hands,trying to lift my head without aiding the movement was unbearable could not even turn my head while in bed (quite a dilemma)ok if i did not move,the pain in my back (lung area)has improved some(40%)had some pain in my spine but insignificant compared to my neck,had some shooting pains in my left leg and left arm,my left shoulder has some pain,my knees are ok,my left foot was more painful underneath the ball (difficult to put weight on)the side of my left foot(half way along left side)quite painful 6/10,the front of my chest is stable,my left wrist had *severe*pain when i tried to pick up a plate with a chicken on it,had to take weight off could not hold plate,this has happened a few times since and i have to be careful what i do with this hand because it may give way,can not remember if i mentioned this before but when i clenched mr right before my little finger locked and did not want to straighten immediately(this is o,k now,my fatigue in my shoulders has improved a lot (50%)no head ache ,no nausea,did not sleep (vert little from exhaustion i think) ps i do not take any pain relief other than benicar at the moment.+Had a very painful night last night,the pain in the left of my neck diminished about 80%,still had some pain on left side of neck just above collar bone but at rear of neck,had breathtaking pain on right side of neck at the base of my scull,could not lift my head had to lift my head physically with my hands,trying to lift my head without aiding the movement was unbearable could not even turn my head while in bed (quite a dilemma)ok if i did not move,the pain in my back (lung area)has improved some(40%)had some pain in my spine but insignificant compared to my neck,had some shooting pains in my left leg and left arm,my left shoulder has some pain,my knees are ok,my left foot was more painful underneath the ball (difficult to put weight on)the side of my left foot(half way along left side)quite painful 6/10,the front of my chest is stable,my left wrist had *severe*pain when i tried to pick up a plate with a chicken on it,had to take weight off could not hold plate,this has happened a few times since and i have to be careful what i do with this hand because it may give way,can not remember if i mentioned this before but when i clenched mr right before my little finger locked and did not want to straighten immediately(this is o,k now,my fatigue in my shoulders has improved a lot (50%)no head ache ,no nausea,did not sleep (vert little from exhaustion i think) ps i do not take any pain relief other than benicar at the moment.
  
 Day 19 I spoke too soon about the pain,it came back with a vengeance last night,did not sleep all  night,it is strange that most of my pain is on my left side,and this is the side which was first involved with my Reiter's syndrome,another member told me that carbs are bad if you have ankleosing/spondilosis which involves spinal pain,is this correct ??,i am  handling the pain at the moment but feel that my diet is exascerbating my condition,the way i am seesawing from mild to extreme pain sounds like what i read about in sun flares and eating sea food or high "D"  foods,but i am not to my knowledge guilty of either of these,i am starting to log my meals to see if i an see any connection,  Day 19 I spoke too soon about the pain,it came back with a vengeance last night,did not sleep all  night,it is strange that most of my pain is on my left side,and this is the side which was first involved with my Reiter's syndrome,another member told me that carbs are bad if you have ankleosing/spondilosis which involves spinal pain,is this correct ??,i am  handling the pain at the moment but feel that my diet is exascerbating my condition,the way i am seesawing from mild to extreme pain sounds like what i read about in sun flares and eating sea food or high "D"  foods,but i am not to my knowledge guilty of either of these,i am starting to log my meals to see if i an see any connection, 
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 Day 27 Day 27
- Had a fairly restless night,plenty of pain in the usual places,neck,back,left hip,left foot,chest,lower back,my left knee,my left foot is quite sore at the moment 6/10,my knee is about the same as my foot both are quite painful,my centre finger on my left hand has started to ache again,no nausea.no headache,no let up in pain,just keeps moving around(chest pain has improved greatly+Had a fairly restless night,plenty of pain in the usual places,neck,back,left hip,left foot,chest,lower back,my left knee,my left foot is quite sore at the moment 6/10,my knee is about the same as my foot both are quite painful,my centre finger on my left hand has started to ache again,no nausea.no headache,no let up in pain,just keeps moving around(chest pain has improved greatly
  
 Day 29  BENICAR  20MG  Q2HR,  MINO 25MG  Q24HR  taking some tramadol 100mg when nescessary Day 29  BENICAR  20MG  Q2HR,  MINO 25MG  Q24HR  taking some tramadol 100mg when nescessary
 had a lot of pain in my left foot and left knee saturday might ,they are both playing up quite a bit lately,but on the other hand i have had a lot of relief in my upper torso,far outweighs any pain in my foot or knee,the knee is at about 8/10 in the pain leval (very sharp pain in the front centre)my left foot is also very painfull to put weight on,the fire in my chest has gone out but the skin is still sensative to touch,still have some pain in my lungs,and neck (reduced)but this did get *very*painfull last night(sun)when i left mino 30hrs,left hip varies in intensity ,but i am sure if i left mino this would flare up had a lot of pain in my left foot and left knee saturday might ,they are both playing up quite a bit lately,but on the other hand i have had a lot of relief in my upper torso,far outweighs any pain in my foot or knee,the knee is at about 8/10 in the pain leval (very sharp pain in the front centre)my left foot is also very painfull to put weight on,the fire in my chest has gone out but the skin is still sensative to touch,still have some pain in my lungs,and neck (reduced)but this did get *very*painfull last night(sun)when i left mino 30hrs,left hip varies in intensity ,but i am sure if i left mino this would flare up
  
- Apr 18th, 2005 +Apr 18th, 2005 
- NECK pain 90% gone (like heaven)am able to sleep,my left foot has been "extremely painfull",my knee is ok,have some pain in my back (lung area)my chest has been very sore from time to time,but slightly more to my right,is still quite painfull if i cough,(sharp pain)i have been nausias all day ,and my nose has been quite watery,i do not have a cold,my left hand is ok,some pain in my right hip (tender spot to push) also have had some lower back pain,more on my left,have had some degree of difficulty passing water at times,no pain,but seems restricted at times,+NECK pain 90% gone (like heaven)am able to sleep,my left foot has been "extremely painfull",my knee is ok,have some pain in my back (lung area)my chest has been very sore from time to time,but slightly more to my right,is still quite painfull if i cough,(sharp pain)i have been nausias all day ,and my nose has been quite watery,i do not have a cold,my left hand is ok,some pain in my right hip (tender spot to push) also have had some lower back pain,more on my left,have had some degree of difficulty passing water at times,no pain,but seems restricted at times,
  
 May 10th May 10th
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 Jun 22nd, Jun 22nd,
-PSHED MYSELF A BIT TOO MUCH AT WORK I THINK,BODY IS HAVING ENOUGH TROUBLE CPING WITH PROTOCOL ET ALONE WORK 70TO 80 HRS A WEEK,GOT A BIT TOO MUCH,ANY WAY FEELNG A BIT BETTER NOW,GETTING PAIN IN MY KIDNEY AREA ON BOTH SDES FROM TIME TO TMESEEMS TO ALTERNATE,FEET STILL PAINFULL IN THE JINTS IN THE MORNING,STILL GETTING VERY HOT WHEN I STAY ON THEM FOR A WHILE,ALMOST BURN,THIS HAS BEEN A PROBLEM FOR YEARS,AS SOON AS I PUT THEM UP(ELAVATED)THE PAIN ALTERS AL;MOST IMMEDIATLEY,THE HEAT SEEMS TO AGRAVATE THE CONDITION,THE COLDER THE TEMPERATURE THE LONGER I CAN STAY ON MY FEET WITHOUT BECOMING PAINFULL,HAVE TAKEN MAGNESIM FOR MY CRAMPS +PUSHED MYSELF A BIT TOO MUCH AT WORK I THINK,BODY IS HAVING ENOUGH TROUBLE COPING WITH PROTOCOL ET ALONE WORK 70 TO 80 HRS A WEEK,GOT A BIT TOO MUCH,ANY WAY FEELING A BIT BETTER NOW,GETTING PAIN IN MY KIDNEY AREA ON BOTH SIDES FROM TIME TO TIME SEEMS TO ALTERNATE,FEET STILL PAINFUL IN THE JINTS IN THE MORNING,STILL GETTING VERY HOT WHEN I STAY ON THEM FOR A WHILE,ALMOST BURN,THIS HAS BEEN A PROBLEM FOR YEARS,AS SOON AS I PUT THEM UP(ELEVATED)THE PAIN ALTERS ALMOST IMMEDIATLEY,THE HEAT SEEMS TO AGGRAVATE THE CONDITION,THE COLDER THE TEMPERATURE THE LONGER I CAN STAY ON MY FEET WITHOUT BECOMING PAINFUL,HAVE TAKEN MAGNESIUM FOR MY CRAMPS 
  
 October 13th October 13th
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 December 2nd December 2nd
-  I AM STILL EXPERIENCING LOWER INTESTINAL CRAMPS ,THE SLIGHTEST STRESS OR EXERTION SEEMS TO BRING ON AN ATTACK,HAVE HAD 5 DAYS OF THIS,MYLANTA WAS GIVING SOME RELIEF BUT I AM NOW USING GASTRO STOP AND THIS SEEMS TO HAVE GIVEN SOME RELIEF+I AM STILL EXPERIENCING LOWER INTESTINAL CRAMPS ,THE SLIGHTEST STRESS OR EXERTION SEEMS TO BRING ON AN ATTACK,HAVE HAD 5 DAYS OF THIS,MYLANTA WAS GIVING SOME RELIEF BUT I AM NOW USING GASTRO STOP AND THIS SEEMS TO HAVE GIVEN SOME RELIEF
      
 MEDS  MINO 100MG Q48HR  BENICAR  40MG Q6HR ZITHROMAX 1/8  500MG TAB Q 48HR   CYCLE 7 OF ZITH MEDS  MINO 100MG Q48HR  BENICAR  40MG Q6HR ZITHROMAX 1/8  500MG TAB Q 48HR   CYCLE 7 OF ZITH
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 March 24th March 24th
- herx reaction at the moment seems to be quite moderate,severe lung pain and spinal pain easing,body temp still hot at night,seem to be burning up at times,my partner sleeps on one side of the bed with blankets and i sleep on the other side with one thin sheet half on me and still feel hot at times,but not in pain except feet burn quite a bitstill,!!+herx reaction at the moment seems to be quite moderate,severe lung pain and spinal pain easing,body temp still hot at night,seem to be burning up at times,my partner sleeps on one side of the bed with blankets and i sleep on the other side with one thin sheet half on me and still feel hot at times,but not in pain except feet burn quite a bitstill,!!
  
 Have not reported this before but i seem to be growing hair on my head WHERE NONE HAS EXISTED FOR QUITE SOME TIME,I HEARD the protocol made you feel young again but did not expect this Have not reported this before but i seem to be growing hair on my head WHERE NONE HAS EXISTED FOR QUITE SOME TIME,I HEARD the protocol made you feel young again but did not expect this
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 2008 April 2008 April
  
- just a  short note,i went to my surgeon that repaired my broken knee 5 years ago to book in for surgery to remove two titanium plates in my leg,i particularly ASKED HIS OPINION on the amount of arthritis present at the site of the multiple fracture he repaired,he said he would have expected to see a lot of arthritis at the site but was pleased to see there was very little if any arthritis at my knee joint,my ankle which was also fractured at the time and went un noticed untill about 3 months after my knee repair has obvious sighns of arthritis at the fracture site ,so a bit of a mixed bag,no arthritis at knee but arthritis obviously evident at ankle +just a  short note,i went to my surgeon that repaired my broken knee 5 years ago to book in for surgery to remove two titanium plates in my leg,i particularly ASKED HIS OPINION on the amount of arthritis present at the site of the multiple fracture he repaired,he said he would have expected to see a lot of arthritis at the site but was pleased to see there was very little if any arthritis at my knee joint,my ankle which was also fractured at the time and went un noticed untill about 3 months after my knee repair has obvious sighns of arthritis at the fracture site ,so a bit of a mixed bag,no arthritis at knee but arthritis obviously evident at ankle 
  
 2009 January 2009 January
- have been off demi and zith a few days now,have noticed a 80% improvment in the pain in my left hip(all but gone)looks like this was herx,also seems to be some improvement in the pain in the front of my groin,which was at the sight of my hernia i had repaired last year,anyway at this time only positive pain improvement, THROAT still Phlegmy+have been off demi and zith a few days now,have noticed a 80% improvment in the pain in my left hip(all but gone)looks like this was herx,also seems to be some improvement in the pain in the front of my groin,which was at the sight of my hernia i had repaired last year,anyway at this time only positive pain improvement, THROAT still Phlegmy
  
 (@4 yrs 10 months on MP) i survived the operation,could not handle the intravenous pain meds they made me sick,so i tried tramocol and then panadol,have had stomach pain for about 2 days now ,taking mylanta to stop pain spasams,starte benicar this morning again,was getting sharp shooting pains up in my sternham and across my chest,has eased now (@4 yrs 10 months on MP) i survived the operation,could not handle the intravenous pain meds they made me sick,so i tried tramocol and then panadol,have had stomach pain for about 2 days now ,taking mylanta to stop pain spasams,starte benicar this morning again,was getting sharp shooting pains up in my sternham and across my chest,has eased now
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 Nov Nov
- sun has not been effecting me anywhere near as much as it used to,going out again this morning,Sulphur (msm)is the main ingredient in Garlic and horse radish that makes it do its job,does wonders for your body ,can be taken with DMSO apparently with even better results+sun has not been effecting me anywhere near as much as it used to,going out again this morning,Sulphur (msm)is the main ingredient in Garlic and horse radish that makes it do its job,does wonders for your body ,can be taken with DMSO apparently with even better results
  
 Don't think hospital will be necessary now,if things keep improving as they have been,it realy has been eye opener this Nutrition exercise,it all started when i started looking for treatment for my Brothers lung Cancer,and came to realise LACK OF NUTRITIONAL Minerals combined wit the TOXIC Chemicals we consume play a massive part in this disease process also Don't think hospital will be necessary now,if things keep improving as they have been,it realy has been eye opener this Nutrition exercise,it all started when i started looking for treatment for my Brothers lung Cancer,and came to realise LACK OF NUTRITIONAL Minerals combined wit the TOXIC Chemicals we consume play a massive part in this disease process also
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 Have another issue at the moment ,(never seems to stop) had an inflamed spot on my left arm below my elbow for the past three months or so ,about 1/4 round and red ,anyway it did not seem to want to heal so i put some BLACK SALVE (cansema on it and it reacted immediately,(it does this when it comes in contact with cancerous cells) . No cancer no reaction!!! pain initially radiated down my arm to my wrist for a few hrs ,then left a bit of a ulcerated sore,am trying to heal it now,played with the scab after showering today and locaed a white grissely centre core going down into my flesh at the centre of where the main scab was ,applied another dose of Black Salve today and it is stinging like hell at the moment ,and the area is swelling, will remove salve later today and clean up and try to prompt tissue to heal , would not heal before Have another issue at the moment ,(never seems to stop) had an inflamed spot on my left arm below my elbow for the past three months or so ,about 1/4 round and red ,anyway it did not seem to want to heal so i put some BLACK SALVE (cansema on it and it reacted immediately,(it does this when it comes in contact with cancerous cells) . No cancer no reaction!!! pain initially radiated down my arm to my wrist for a few hrs ,then left a bit of a ulcerated sore,am trying to heal it now,played with the scab after showering today and locaed a white grissely centre core going down into my flesh at the centre of where the main scab was ,applied another dose of Black Salve today and it is stinging like hell at the moment ,and the area is swelling, will remove salve later today and clean up and try to prompt tissue to heal , would not heal before
  
- had issue with BCC  a few yrs ago and had half my right ear hacked up by the specialist,and if they saw this ,i am sure they would make a mess of my arm+had issue with BCC  a few yrs ago and had half my right ear hacked up by the specialist,and if they saw this ,i am sure they would make a mess of my arm
  
 29 April 29 April
- all is going well ,the big hole i had in my arm two weeks ago has almost dissapeared,just about healed before my eyes, used DMSO, ALSO I BELIEVE SHEET ACCELERATED HEALING PROCESS, MY SISTER SAW THE WOUND after i applied the Black Salve two weeks ago and can not believe how fast the tissue has repaired,+all is going well ,the big hole i had in my arm two weeks ago has almost dissapeared,just about healed before my eyes, used DMSO, ALSO I BELIEVE SHEET ACCELERATED HEALING PROCESS, MY SISTER SAW THE WOUND after i applied the Black Salve two weeks ago and can not believe how fast the tissue has repaired,
  
- Energy levals very good,no pain ,back getting better and better, Feet not burning  +Energy levals very good,no pain ,back getting better and better, Feet not burning  
  
  
 May May
- Benicar 40 mg q8hr Mino maybe twice a week+Benicar 40 mg q8hr Mino maybe twice a week
  
 One thing about the Twice a week Mino, previously i needed more regular  Mino to palliate symptoms (i mean pre MP) am slowly trying to wean off One thing about the Twice a week Mino, previously i needed more regular  Mino to palliate symptoms (i mean pre MP) am slowly trying to wean off
  
- Previously stated feet burning gone, maybe i was a bit hasty , but definitely improved greatly:)+Previously stated feet burning gone, maybe i was a bit hasty , but definitely improved greatly:)
  
-  Lower back pain comes and goes,am not sure that this is entirely due to impinged nerve , went to hospital on the weekend with abdominal pain,thought it may have been Appendicitis ,but they seem to think it was muscular,but at the same time they rang me next day to say they were not real impressed with my Kidney function tests , and suggested i see my local Doc to discuss further ,there were some other issues apparently also,all in all they called to see if i was OK,as they could not process my blood that night , my fingernails were almost pure whit a few months ago ,and when i looked that up on the net ,it indicated renal problems, They are not so bad now ,but were worryingly almost entirely white , also the Doc from the hospital asked if i had ever had any Kidney Disease,not the first time i have been asked this+Lower back pain comes and goes,am not sure that this is entirely due to impinged nerve , went to hospital on the weekend with abdominal pain,thought it may have been Appendicitis ,but they seem to think it was muscular,but at the same time they rang me next day to say they were not real impressed with my Kidney function tests , and suggested i see my local Doc to discuss further ,there were some other issues apparently also,all in all they called to see if i was OK,as they could not process my blood that night , my fingernails were almost pure whit a few months ago ,and when i looked that up on the net ,it indicated renal problems, They are not so bad now ,but were worryingly almost entirely white , also the Doc from the hospital asked if i had ever had any Kidney Disease,not the first time i have been asked this
      
 July July
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 i use DMSO , SULPHUR AND COLLOIDIAL SILVER 60PPM ,DONT THINK ANYTHING WILL SURVIVE THAT i use DMSO , SULPHUR AND COLLOIDIAL SILVER 60PPM ,DONT THINK ANYTHING WILL SURVIVE THAT
  
- using dmso topically to try to limit risk of infection+using dmso topically to try to limit risk of infection
  
 2012 2012
 Jan Jan
  
- short update ,still experiencing lower back pain ,have been trying acupuncture(once so far) no relief yet ,pain seems to move around spine a bit .mainly lower level, L3,L4,L5, BUT BY THE SAME TOKEN ALSO MOVES TO UPPER BACK LUNG AREA IN ADDITION TO LOWER BACK AND ALSO RIGHT kidney AREA ,BEHIND LOWER RIBS , HAVE ARRANGED TO SEE PAIN SPECIALIST AGAIN WITH THE VIEW TO HAVING MORE INJECTIONS IN THE L23 LEVEL,THE FUNNY THING IS I GET CONTRADICTING ANALYSIS OF THE MRI AND XRAYS, NEUROSURGEON SAYS BACK IS NOT THAT GOOD ND HAVE EVIDENCE OF STENOCIS AND BULGING DISCS,BUT PAIN SPECIALIST LOOKS AT SAME IMAGES AND SAYS THERE IS NO EVIDENCE OF STENOCIS AND HE WISHES HIS BACK WAS IN AS GOOD CONDITION AS MINE (REFERRING TO CONDITION OF DISCS )SO I DONT KNOW,FURTHERMORE PAIN SPECIALIST(APPROX 40YRS EXPERIENCE) SAYS ,NO WONDER NO SURGEON WILL GO NOWHERE NEAR YOUR BACK WITH A KNIFE+short update ,still experiencing lower back pain ,have been trying acupuncture(once so far) no relief yet ,pain seems to move around spine a bit .mainly lower level, L3,L4,L5, BUT BY THE SAME TOKEN ALSO MOVES TO UPPER BACK LUNG AREA IN ADDITION TO LOWER BACK AND ALSO RIGHT kidney AREA ,BEHIND LOWER RIBS , HAVE ARRANGED TO SEE PAIN SPECIALIST AGAIN WITH THE VIEW TO HAVING MORE INJECTIONS IN THE L23 LEVEL,THE FUNNY THING IS I GET CONTRADICTING ANALYSIS OF THE MRI AND XRAYS, NEUROSURGEON SAYS BACK IS NOT THAT GOOD ND HAVE EVIDENCE OF STENOCIS AND BULGING DISCS,BUT PAIN SPECIALIST LOOKS AT SAME IMAGES AND SAYS THERE IS NO EVIDENCE OF STENOCIS AND HE WISHES HIS BACK WAS IN AS GOOD CONDITION AS MINE (REFERRING TO CONDITION OF DISCS )SO I DONT KNOW,FURTHERMORE PAIN SPECIALIST(APPROX 40YRS EXPERIENCE) SAYS ,NO WONDER NO SURGEON WILL GO NOWHERE NEAR YOUR BACK WITH A KNIFE
  
 I was introduced to a old chinese Dr yesterday by my Bank Manager, we have an area in Perth here that is like a small China Town I was introduced to a old chinese Dr yesterday by my Bank Manager, we have an area in Perth here that is like a small China Town
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 Furhermore her Herbs may be beneficial to my general health Furhermore her Herbs may be beneficial to my general health
  
- Feb 26th, 2012+Feb 26th, 2012
 All is well in the health department as far as reiters syndrome symptoms are concerned ,no longer an issue All is well in the health department as far as reiters syndrome symptoms are concerned ,no longer an issue
  
-Lung flem not also problem at the moment+Lung phlegm not also problem at the moment
  
 Lower back problem may be being exacerbated by an old horse riding injury ,have orthotic inserts made for my shoes ,one of my feet is leaning in putting pressure on my back, hopefully orthotics will help Lower back problem may be being exacerbated by an old horse riding injury ,have orthotic inserts made for my shoes ,one of my feet is leaning in putting pressure on my back, hopefully orthotics will help
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- i believe the heavy metals compramised my immune system and made me susceptible to infection.+i believe the heavy metals compramised my immune system and made me susceptible to infection.
 As for my health at present i am improving every day ,at the moment bouncing out of my skin As for my health at present i am improving every day ,at the moment bouncing out of my skin
 just hope it keeps going just hope it keeps going
home/diseases/reactive_arthritis.txt · Last modified: 09.14.2022 by 127.0.0.1
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