You are here: Welcome to the MPKB » Welcome to the MPKB » Diseases » Reactive arthritis (Reiter's syndrome)
Home

Differences

This shows you the differences between two versions of the page.

Link to this comparison view

Both sides previous revisionPrevious revision
Next revision		Previous revision
Next revisionBoth sides next revision
home:diseases:reactive_arthritis [01.15.2019] – [Patient information] sallieqhome:diseases:reactive_arthritis [01.15.2019] – [Detailed Patient report] sallieq
Line 36: Line 36:
 CONCLUSION:: These data suggest that a 6-month course of combination antibiotics is an effective therapy for chronic Chlamydia-induced ReA. CONCLUSION:: These data suggest that a 6-month course of combination antibiotics is an effective therapy for chronic Chlamydia-induced ReA.
  
-===== Detailed Patient reporting =====+===== Detailed Patient report =====
  
 My diagnosis was Reiter's Syndrome (10 yrs) was on methotrexate and cortizone,until i found Dr Browns protocol,now on arthrexin and sulphasalazine,My diet contains quite a lot of dairy,variety of breads rye and white,pastas and meat. My diagnosis was Reiter's Syndrome (10 yrs) was on methotrexate and cortizone,until i found Dr Browns protocol,now on arthrexin and sulphasalazine,My diet contains quite a lot of dairy,variety of breads rye and white,pastas and meat.
Line 105: Line 105:
 SYMPTOMS HAVE GENERALLY DETERIORATED,LEFT FOOT PAIN HAS INCREASED,EXTREMELY PAINFUL TO WALK EVEN WITH CRUTCH,THE ARCH ON THE TOP OF MY LEFT FOOT IS ALMOST TOO PAINFUL TO TOUCH,THE SKIN IS VERY SENSITIVE TO TOUCH,AS IF BURNT SKIN,BUT THEN THERE IS ALSO PAIN ON MY BIG TOE JOINT AND SWELLING,THE LONG BONE THAT EXTENDS UP THE UPPER ARCH OF MY FOOT FROM MY BIG TOE IS ALSO EXTREMELY SENSITIVE,MY TAIL BONE IS STILL SORE,MY RIGHT INDEX FINGER IS  SORE AND SWOLLEN.I AM EXPERIENCING PAIN IN MY LEFT LOWER RIB CAGE AND ALSO MY BREAST BONE,I HAVE HAD SOME PAIN IN MY STOMACH ALSO,CAN NOT THINK OF EVERYTHING BUT THERE IS NOT MUCH THAT IS NOT ACHING,BUT MY FOOT S BY FAR THE WORST,SYMPTOMS HAVE DETERIORATED SINCE INTRODUCTION OF CLINDY,HAD A ROUGH WEEKEND ,GLAD TO BE BACK AT WORK MONDAY ,AT LEAST IT TAKES MY MIND OFF THE PAIN ,MY BODY STILL BURNS (RADIATES PLENTY OF HEAT)CAN NOT BEAR TO PUT MY FOOT UNDER THE BLANKETS AT NIGHT AS PAIN INCREASES WITH HEAT SYMPTOMS HAVE GENERALLY DETERIORATED,LEFT FOOT PAIN HAS INCREASED,EXTREMELY PAINFUL TO WALK EVEN WITH CRUTCH,THE ARCH ON THE TOP OF MY LEFT FOOT IS ALMOST TOO PAINFUL TO TOUCH,THE SKIN IS VERY SENSITIVE TO TOUCH,AS IF BURNT SKIN,BUT THEN THERE IS ALSO PAIN ON MY BIG TOE JOINT AND SWELLING,THE LONG BONE THAT EXTENDS UP THE UPPER ARCH OF MY FOOT FROM MY BIG TOE IS ALSO EXTREMELY SENSITIVE,MY TAIL BONE IS STILL SORE,MY RIGHT INDEX FINGER IS  SORE AND SWOLLEN.I AM EXPERIENCING PAIN IN MY LEFT LOWER RIB CAGE AND ALSO MY BREAST BONE,I HAVE HAD SOME PAIN IN MY STOMACH ALSO,CAN NOT THINK OF EVERYTHING BUT THERE IS NOT MUCH THAT IS NOT ACHING,BUT MY FOOT S BY FAR THE WORST,SYMPTOMS HAVE DETERIORATED SINCE INTRODUCTION OF CLINDY,HAD A ROUGH WEEKEND ,GLAD TO BE BACK AT WORK MONDAY ,AT LEAST IT TAKES MY MIND OFF THE PAIN ,MY BODY STILL BURNS (RADIATES PLENTY OF HEAT)CAN NOT BEAR TO PUT MY FOOT UNDER THE BLANKETS AT NIGHT AS PAIN INCREASES WITH HEAT
  
-2006 Jan 17th+**2006** Jan 17th
 HAVE DEVELOPED SOME SORENESS IN THE LOWER SECTION OF MY SPINE ABOUT 1/3 OF THE WAY UP VERY TENDER TO PUSH ON,MY COXIC BONE SORENESS HAS DECREASED TO THE POINT IT IS BARELY NOTICABLE,HAVE A SORE SPOT ALSO JUST ABOVE MY ANKLE BONE ON MY RIGHT FOOT,MY LEFT FOOT HAS AT TIMES FELT ALMOST NORMAL(ALMOST AT TIMES!)HAVE HAD SOME CRAMPS IN MY RIGHT FOOT ESPECIALY,AND SOME SORENESS IN THE TOES AT TIMES  (NOTHING LIKE I HAD IN MY LEFT FOOT) AM STILL GETTING PAIN IN MY ABDOMIN AND GROIN AREA (BEARABLE),SHARP PAIN ON THE RIGHT SIDE WHEN I MOVE MY LEG TO GET UP OR OUT OF MY CAR,MOST OF THE ABOVE SYMTOMS ARE REASONABLY NEW AS SOME OLD ONES HAVE GONE,AND THIS I FIND VERY ENCOURAGING,STILL GOT SOME SKIN ITCHING,KNEE SORENESS SLIGHTLY LESS  THATS ABOUT ALL FOR NOW HAVE DEVELOPED SOME SORENESS IN THE LOWER SECTION OF MY SPINE ABOUT 1/3 OF THE WAY UP VERY TENDER TO PUSH ON,MY COXIC BONE SORENESS HAS DECREASED TO THE POINT IT IS BARELY NOTICABLE,HAVE A SORE SPOT ALSO JUST ABOVE MY ANKLE BONE ON MY RIGHT FOOT,MY LEFT FOOT HAS AT TIMES FELT ALMOST NORMAL(ALMOST AT TIMES!)HAVE HAD SOME CRAMPS IN MY RIGHT FOOT ESPECIALY,AND SOME SORENESS IN THE TOES AT TIMES  (NOTHING LIKE I HAD IN MY LEFT FOOT) AM STILL GETTING PAIN IN MY ABDOMIN AND GROIN AREA (BEARABLE),SHARP PAIN ON THE RIGHT SIDE WHEN I MOVE MY LEG TO GET UP OR OUT OF MY CAR,MOST OF THE ABOVE SYMTOMS ARE REASONABLY NEW AS SOME OLD ONES HAVE GONE,AND THIS I FIND VERY ENCOURAGING,STILL GOT SOME SKIN ITCHING,KNEE SORENESS SLIGHTLY LESS  THATS ABOUT ALL FOR NOW
  
Line 130: Line 130:
 SX RIGHT KNEE HAS VERY SHARP PAIN INSIDE,ALMOST UNBERABLE TO PUT WEIGHT ON MY LEG,LEFT SHOULDER ALSO CATCHING INSIDE WHEN ROTATED SX RIGHT KNEE HAS VERY SHARP PAIN INSIDE,ALMOST UNBERABLE TO PUT WEIGHT ON MY LEG,LEFT SHOULDER ALSO CATCHING INSIDE WHEN ROTATED
  
-2007+**2007**
 February 17th February 17th
 NOTICING  BRAIN HERX ON DAY OF CLINDY DOSE,SETTLES BY NEXT DAY. NOTICING  BRAIN HERX ON DAY OF CLINDY DOSE,SETTLES BY NEXT DAY.
Line 157: Line 157:
 Just a short note,have been eating some yoghurts lately and they seem to have had an adverse effect on me ,had unbearable pain behind my hear last night,had to take some quarterzone to relieve pain,also took tramal and panadole,i recall this has also happened in the past but i thought i would possibly be o.k at this stage (lucky i had some prednisalone as io could not bear the pain it was so intense Just a short note,have been eating some yoghurts lately and they seem to have had an adverse effect on me ,had unbearable pain behind my hear last night,had to take some quarterzone to relieve pain,also took tramal and panadole,i recall this has also happened in the past but i thought i would possibly be o.k at this stage (lucky i had some prednisalone as io could not bear the pain it was so intense
  
-2008 April+**2008** April
  
-just a  short note,i went to my surgeon that repaired my broken knee 5 years ago to book in for surgery to remove two titanium plates in my leg,i particularly ASKED HIS OPINION on the amount of arthritis present at the site of the multiple fracture he repaired,he said he would have expected to see a lot of arthritis at the site but was pleased to see there was very little if any arthritis at my knee joint,my ankle which was also fractured at the time and went un noticed untill about 3 months after my knee repair has obvious sighns of arthritis at the fracture site ,so a bit of a mixed bag,no arthritis at knee but arthritis obviously evident at ankle +just a  short note,<blockquote>i went to my surgeon that repaired my broken knee 5 years ago to book in for surgery to remove two titanium plates in my leg,i particularly ASKED HIS OPINION on the amount of arthritis present at the site of the multiple fracture he repaired,he said he would have expected to see a lot of arthritis at the site but was pleased to see there was very little if any arthritis at my knee joint,my ankle which was also fractured at the time and went un noticed until about 3 months after my knee repair has obvious signs of arthritis at the fracture site ,so a bit of a mixed bag,no arthritis at knee but arthritis obviously evident at ankle</blockquote> 
  
-2009 January+**2009** January
 have been off demi and zith a few days now,have noticed a 80% improvment in the pain in my left hip(all but gone)looks like this was herx,also seems to be some improvement in the pain in the front of my groin,which was at the sight of my hernia i had repaired last year,anyway at this time only positive pain improvement, THROAT still Phlegmy have been off demi and zith a few days now,have noticed a 80% improvment in the pain in my left hip(all but gone)looks like this was herx,also seems to be some improvement in the pain in the front of my groin,which was at the sight of my hernia i had repaired last year,anyway at this time only positive pain improvement, THROAT still Phlegmy
  
 (@4 yrs 10 months on MP) i survived the operation,could not handle the intravenous pain meds they made me sick,so i tried tramocol and then panadol,have had stomach pain for about 2 days now ,taking mylanta to stop pain spasams,starte benicar this morning again,was getting sharp shooting pains up in my sternham and across my chest,has eased now (@4 yrs 10 months on MP) i survived the operation,could not handle the intravenous pain meds they made me sick,so i tried tramocol and then panadol,have had stomach pain for about 2 days now ,taking mylanta to stop pain spasams,starte benicar this morning again,was getting sharp shooting pains up in my sternham and across my chest,has eased now
  
-I questioned Doc regarding evidence of arthritis at the location of the plates and pins and he told me there was none,(on my previous visit to see him he had told me that even though no arthritis was evident on the x rays ,he was fairly certain this would not be the case when the plates were removed)surprise for him ,but he did not make much of it+<blockquote>I questioned Doc regarding evidence of arthritis at the location of the plates and pins and he told me there was none,(on my previous visit to see him he had told me that even though no arthritis was evident on the x rays ,he was fairly certain this would not be the case when the plates were removed)surprise for him ,but he did not make much of it.
  
-As for the condition of my bones,i did specifically ask him to pay attention to the condition of them and if he found them fragile or unusual in regards to the noem,again he commented all seemed good+ 
 +As for the condition of my bones,i did specifically ask him to pay attention to the condition of them and if he found them fragile or unusual in regards to the bone,again he commented all seemed good 
 +</blockquote>
  
 Jan 23rd, 2009  have been out of hospital 7 days now,added demi back two days ago,no adverse herx,added zith back today ,will let you know how it goes,am seeing chiro again today,apparently my hip joints are quite badly affected by arthritis and in his words almost fused ,had a lot of severe pain in nerve at back of left hip,his manipulating has eased this a lot ,and he tells me i need to keep going for quite some time to get some movement in the joint and stop it seizing all together Jan 23rd, 2009  have been out of hospital 7 days now,added demi back two days ago,no adverse herx,added zith back today ,will let you know how it goes,am seeing chiro again today,apparently my hip joints are quite badly affected by arthritis and in his words almost fused ,had a lot of severe pain in nerve at back of left hip,his manipulating has eased this a lot ,and he tells me i need to keep going for quite some time to get some movement in the joint and stop it seizing all together
Line 174: Line 176:
 May 10th May 10th
 ,removing zith and bactrim has decreased herx to a large degree,right knee which had plates removed continues to improve,can walk 5klm no pain now,before was stiff next day and painful,but there is currently no pain when walking and no stiffness in the morning,the removal of the plats played a big part ,but there has also been a major improvement since i ceased the anti biotics ,removing zith and bactrim has decreased herx to a large degree,right knee which had plates removed continues to improve,can walk 5klm no pain now,before was stiff next day and painful,but there is currently no pain when walking and no stiffness in the morning,the removal of the plats played a big part ,but there has also been a major improvement since i ceased the anti biotics
 +<blockquote>
 +I seem to have my old knee 95% back at the moment it realy feels great,considering the break was the worst the surgeon had seen in about 20 yrs,the degree of healing has been amazing and i am sure a lot is a result of the protocol,the surgeon kept on insisting there would be arthritis in the joint even though it did not show in the exray,and when the plates were removed he assured me there would definatly be arthritis evident,well guess what NO ARTHRITIS there either ,hard for him to admit i had to prise it out of him after the operation,they don"t like to be proved wrong,but in my case the degree of healing has been beyond what he ever expected.</blockquote>
  
-,seem to have my old knee 95% back at the moment it realy feels great,considering the break was the worst the surgeon had seen in about 20 yrs,the degree of healing has been amazing and i am sure a lot is a result of the protocol,the surgeon kept on insisting there would be arthritis in the joint even though it did not show in the exray,and when the plates were removed he assured me there would definatly be arthritis evident,well guess what NO ARTHRITIS there either ,hard for him to admit i had to prise it out of him after the operation,they don"t like to be proved wrong,but in my case the degree of healing has been beyond what he ever expected +My local Gp has finally expressed interest in the protocol and is going to have a look at the prague conference dvd 
- +
-My local Gp has finally expressed interest in the protocoll and is gointg to have a look at the prague conference dvd +
  
 June 9 June 9
Line 191: Line 193:
 Just a short note, have been experiencing some pain in my upper back and lung area 6/10 , also quite a lot of pain in my kidney area radiating across to both sides of my lower back 6/10,seems to reduce when i get up and about , and increases when i am less active at night, still have some phlem problem , but not interfering with exercise regime , swimming alternate days and walking also , herx seems to be increasing since stopping Mino Just a short note, have been experiencing some pain in my upper back and lung area 6/10 , also quite a lot of pain in my kidney area radiating across to both sides of my lower back 6/10,seems to reduce when i get up and about , and increases when i am less active at night, still have some phlem problem , but not interfering with exercise regime , swimming alternate days and walking also , herx seems to be increasing since stopping Mino
  
-2010+**2010**
 Feb Feb
 Seem to be having massive herx ,may have introduced zith at too high a leva Seem to be having massive herx ,may have introduced zith at too high a leva
Line 205: Line 207:
 Lungs are still a problem ,but the back looks like it may be OK  Lungs are still a problem ,but the back looks like it may be OK 
  
-2011+**2011**
 Jan Benicar 20mg q8hr Minocin 100mg q72hrs  Jan Benicar 20mg q8hr Minocin 100mg q72hrs 
 ,lower back pain has decreased significantly with the use of Sulphur /MSM ,CAN NOT BELIEVE THE DIFFERENCE THIS HAS MADE,AM KAYAKING TWICE A WEEK NOW EARLY MORNINGS FOR APPROX 1.5 HRS EACH DAY ,ABOUT 8K-10 KLM  ,I WOULD HAVE NEVER BELIEVED THIS 2 MONTHS AGO , MY FEET ARE STILL GETTING HOT, LUNG INFEVTION ALL BUT GONSun sensativity minimal,not reacting as i used to ,paddle early morings in daylight ,6am to 7.30am ,but no negative noticable herx,wear noirs and protective clothing,legs partly exposed,upper body wear thyermal top and spf 50 shirt and Nizerol cream on face and gloves on hands  ,lower back pain has decreased significantly with the use of Sulphur /MSM ,CAN NOT BELIEVE THE DIFFERENCE THIS HAS MADE,AM KAYAKING TWICE A WEEK NOW EARLY MORNINGS FOR APPROX 1.5 HRS EACH DAY ,ABOUT 8K-10 KLM  ,I WOULD HAVE NEVER BELIEVED THIS 2 MONTHS AGO , MY FEET ARE STILL GETTING HOT, LUNG INFEVTION ALL BUT GONSun sensativity minimal,not reacting as i used to ,paddle early morings in daylight ,6am to 7.30am ,but no negative noticable herx,wear noirs and protective clothing,legs partly exposed,upper body wear thyermal top and spf 50 shirt and Nizerol cream on face and gloves on hands 
Line 243: Line 245:
 using dmso topically to try to limit risk of infection using dmso topically to try to limit risk of infection
  
-2012+**2012**
 Jan Jan
  
Line 287: Line 289:
 ,i assume due to my increased blood pressure 120/80now,arms do not get so fatigued when swimming ,i assume due to my increased blood pressure 120/80now,arms do not get so fatigued when swimming
  
-2016+**2016**
 April April
 I got seriously ill ,after a trip to the Philippines ,all the symptoms i had before ,aching painful joints all over ,could barely move I got seriously ill ,after a trip to the Philippines ,all the symptoms i had before ,aching painful joints all over ,could barely move
Line 298: Line 300:
 Most recently infected by Bed Bugs it said  Most recently infected by Bed Bugs it said 
  
-2018+**2018**
 since the last time i posted , i have been to Malaysia for 2 rounds of Hypothermia treatment ,with multiple IV Antibiotics since the last time i posted , i have been to Malaysia for 2 rounds of Hypothermia treatment ,with multiple IV Antibiotics
 This saw the removal of parasites from my stool (yuk) This saw the removal of parasites from my stool (yuk)
Line 321: Line 323:
  
  
- +{{tag>disease }}
- +
- +
-{{tag>disease arrange}}+
  
  
home/diseases/reactive_arthritis.txt · Last modified: 09.14.2022 by 127.0.0.1
© 2015, Autoimmunity Research Foundation. All Rights Reserved.