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home:diseases:sjogrens [07.31.2018] – [Patient interviews] sallieq | home:diseases:sjogrens [01.02.2019] – [Recent Research] sallieq | ||
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======Sjogren' | ======Sjogren' | ||
+ | ===== Introduction ===== | ||
+ | [[https:// | ||
+ | International classification criteria for Sjögrens syndrome include ocular symptoms, oral symptoms, ocular signs, histopathology, | ||
- | ===== | + | ===== Evidence of infectious cause ===== |
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+ | ===== Recent Research ===== | ||
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+ | According to literature, Sjogren' | ||
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+ | These results showed that IL-6 stimulation induced REG Iα transcription through STAT3 activation and binding to the consensus sequence of REG Iα promoter in salivary ductal cells. This IL-6/STAT dependent REG Iα induction might play a role in the pathogenesis of SS.(({{pubmed> | ||
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+ | pSS patients have impaired blood pressure response to standing. Dysautonomia correlates with PSS-associated symptoms and quality of life. | ||
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+ | This information aids understanding of the history and development of dry eye research, in addition to the impact and characteristics of the contributors to the field. | ||
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+ | The purpose of this study was to investigate salivary tissue assessment with various sonoelastographic modalities (real-time tissue elastography, | ||
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+ | Primary Sjögren' | ||
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+ | Abnormalities of memory B cells seem to be closely involved in the pathogenesis of primary Sjögrens Syndrome (pSS) and its malignant complication, | ||
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+ | The presence of Sjögren' | ||
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+ | This report presents a patient with Devics neuromyelitis optica associated with primary Sjögrens syndrome. Her first attack was right-sided optic neuritis at age 10 years. Attacks involving both optic nerves and medulla spinalis were recorded during the ensuing years. The diagnosis of Sjögrens syndrome could not be made until the second decade because it was not suspected. | ||
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+ | The quality of life of patients with Sjogrens syndrome often is degraded further by serious, multisystemic manifestations, | ||
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+ | OBJECTIVES: To develop a questionnaire for the assessment of health-related quality of life (HRQL) in primary Sjögren' | ||
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+ | ===== Patient interviews | ||
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===== Patient experiences and discussion from Study Site topic(s) ===== | ===== Patient experiences and discussion from Study Site topic(s) ===== | ||
- | eC posted: Mon Mar 21st, 2011 to E-N's progress thread. | + | < |
+ | "I started to suffer from my eyelids sticking to my eyes in the night two years into the MP (I am now a few months into year 5). At first, it was just that and brought on by a sleep med in the same family as Valium, which I had to stop using after a couple of months because it became ineffective. | ||
- | "I started to suffer from my eyelids sticking to my eyes in the night two years into the MP (I am now a few months into year 5). At first, it was just that and brought on by a sleep med in the same family as Valium, which I had to stop using after a couple of months because it became ineffective. | ||
- | Now, however, the coconut oil seems to aggravate. | + | //eC posted: Mon Mar 21st, 2011to E-N// |
- | A D replied Mar 23rd, 2011 | + | Now, however, the coconut oil seems to aggravate. |
- | "My eyes have been a problem for a long time. First I felt that I had fibers in my eyes and was constantly trying to find them but never could. For years I blamed it on my woolen blanket. But, then when the fibers started to turn into glasslike shards I realized it was part of my Lyme symptoms. For a while, before I was on the MP, I needed to use eye drops many times during the day...my eyes were severely dry and irritated, but always the worst in the am. | + | |
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My doctor didn't believe me when I told him I had glass-like shards...he thought I was joking. Crystals is a better word, but they feel like glass to me. | My doctor didn't believe me when I told him I had glass-like shards...he thought I was joking. Crystals is a better word, but they feel like glass to me. | ||
My eyes are constantly changing as I proceed through the MP. I can go for long periods with no problems at all, and then, the grittiness and the stickiness return, usually accompanied by blurred vision and other herx symptoms. | My eyes are constantly changing as I proceed through the MP. I can go for long periods with no problems at all, and then, the grittiness and the stickiness return, usually accompanied by blurred vision and other herx symptoms. | ||
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The only thing that seems to help is the natural tears eye drops. | The only thing that seems to help is the natural tears eye drops. | ||
- | I put the sandlike grains that my skin used to exude and the crystals in my eyes into the same category. The sand has stopped...so I am hoping the gritty eyes will eventually as well." | + | I put the sandlike grains that my skin used to exude and the crystals in my eyes into the same category. The sand has stopped...so I am hoping the gritty eyes will eventually as well." |
- | SQ posted: Tue May 3rd, 2011 05:56 | ||
- | " for months and months maybe years before I started MP, I experienced gritty eyes. I always thought I had something in the eye as it would come and go, also I live in a windy dirty part of a big city. | ||
- | I had never heard of Sjogrens syndrome, and when I went to my MP doctor to complain | ||
- | eC posted | + | < |
- | TC Posted: Sat Sep 1st, 2012 04:16 | ||
- | "I found information that said many bacteria, microbes etc accumulate on the eyelashes. | ||
- | When my eyes get itchy and watery, I gently scrub my eyelashes with a gentle soap and water 3-4 times a day or as often as needed. | + | < |
+ | I had never heard of Sjogrens syndrome, and when I went to my MP doctor to complain | ||
- | SQ posted "Lee recommended washing eyelashes in baby shampoo | + | < |
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+ | When my eyes get itchy and watery, I gently scrub my eyelashes with a gentle soap and water 3-4 times a day or as often as needed. | ||
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I was about to go and look for "No More Tears", | I was about to go and look for "No More Tears", | ||
- | when I noticed my daughter had left ' | + | when I noticed my daughter had left ' |
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+ | ===== Traditional Chinese medicines used in primary Sjogren' | ||
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+ | The aOR for those suffering from at least one rheumatologic disease was 1.56 (95% CI: 1.26-1.93), those with two rheumatologic diseases was 1.98 (95% CI: 1.29-3.04), while those with three or more rheumatologic diseases was 7.86 (95% CI: 1.09-56.58). | ||
- | < | + | {{tag>disease arrange}} |