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home:diseases:sjogrens [02.22.2017] – [Patient interviews] sallieq | home:diseases:sjogrens [07.31.2018] – [Patient interviews] sallieq | ||
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It must have been the latest of my ' | It must have been the latest of my ' | ||
+ | see [[https:// | ||
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+ | ===== Patient experiences and discussion from Study Site topic(s) ===== | ||
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+ | eC posted: Mon Mar 21st, 2011 to E-N's progress thread. | ||
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+ | "I started to suffer from my eyelids sticking to my eyes in the night two years into the MP (I am now a few months into year 5). At first, it was just that and brought on by a sleep med in the same family as Valium, which I had to stop using after a couple of months because it became ineffective. | ||
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+ | Now, however, the coconut oil seems to aggravate. | ||
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+ | A D replied Mar 23rd, 2011 | ||
+ | "My eyes have been a problem for a long time. First I felt that I had fibers in my eyes and was constantly trying to find them but never could. For years I blamed it on my woolen blanket. But, then when the fibers started to turn into glasslike shards I realized it was part of my Lyme symptoms. For a while, before I was on the MP, I needed to use eye drops many times during the day...my eyes were severely dry and irritated, but always the worst in the am. | ||
+ | My doctor didn't believe me when I told him I had glass-like shards...he thought I was joking. Crystals is a better word, but they feel like glass to me. | ||
+ | My eyes are constantly changing as I proceed through the MP. I can go for long periods with no problems at all, and then, the grittiness and the stickiness return, usually accompanied by blurred vision and other herx symptoms. | ||
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+ | The only thing that seems to help is the natural tears eye drops. | ||
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+ | I put the sandlike grains that my skin used to exude and the crystals in my eyes into the same category. The sand has stopped...so I am hoping the gritty eyes will eventually as well." | ||
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+ | SQ posted: Tue May 3rd, 2011 05:56 | ||
+ | " for months and months maybe years before I started MP, I experienced gritty eyes. I always thought I had something in the eye as it would come and go, also I live in a windy dirty part of a big city. | ||
+ | I had never heard of Sjogrens syndrome, and when I went to my MP doctor to complain | ||
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+ | eC posted " | ||
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+ | TC Posted: Sat Sep 1st, 2012 04:16 | ||
+ | "I found information that said many bacteria, microbes etc accumulate on the eyelashes. | ||
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+ | When my eyes get itchy and watery, I gently scrub my eyelashes with a gentle soap and water 3-4 times a day or as often as needed. | ||
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+ | SQ posted "Lee recommended washing eyelashes in baby shampoo | ||
+ | I was about to go and look for "No More Tears", | ||
+ | when I noticed my daughter had left ' | ||
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