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home:publications:mp2008_survey [10.24.2009] – external edit 127.0.0.1home:publications:mp2008_survey [05.27.2011] – Added explanation of how patients were selected joyful
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 The results of the survey indicate that the Marshall Protocol resolves symptoms of autoimmune disease over the course of multiple years. The results of the survey indicate that the Marshall Protocol resolves symptoms of autoimmune disease over the course of multiple years.
  
 +===== Methods =====
  
  
-===== Methods ===== +Joyce Waterhouse, PhD created an 18-question survey in 2007. Surveys were distributed via email to 150 patients in the late part of 2007 and early part of 2008. These 150 patients were selected from the forum membership at large due to having reported at least one Autoimmune diagnosis. 
  
-Joyce Waterhouse, PhD created an 18-question survey in 2007. Surveys were distributed via email to 150 patients in the late part of 2007 and early part of 2008. Of the 115 surveys returned, 100 met the criteria for inclusion in the survey. Certain patients were excluded:+Of the 115 surveys returned, 100 met the criteria for inclusion in the survey. Patient surveys were excluded for the following reasons:
   * unconfirmed diagnosis (n = 9)   * unconfirmed diagnosis (n = 9)
   * less than one month on Protocol (n = 1)   * less than one month on Protocol (n = 1)
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 The response rate (percent who completed the survey of those who were sent it) among those with only fibromyalgia (from the list of conditions we surveyed) was lower -- 50%.  I speculate that the lower response rate may be that they think they have more options, as there are so many alternative medicine approaches that are marketed to them and so perhaps they feel less willing to stick out the IP.  I don't think we can conclude it is necessarily that they have more trouble or something -- we just don't know. The response rate (percent who completed the survey of those who were sent it) among those with only fibromyalgia (from the list of conditions we surveyed) was lower -- 50%.  I speculate that the lower response rate may be that they think they have more options, as there are so many alternative medicine approaches that are marketed to them and so perhaps they feel less willing to stick out the IP.  I don't think we can conclude it is necessarily that they have more trouble or something -- we just don't know.
  
-Joyce Waterhouse, PhD</blockquote>+ //**Joyce Waterhouse, PhD**// </blockquote>
  
  
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   *  14% reported their inhalant allergies were the same (3/22)   *  14% reported their inhalant allergies were the same (3/22)
   *   9% reported their inhalant allergies were worse (2/22)   *   9% reported their inhalant allergies were worse (2/22)
- 
- 
 ===== Notes on interpretation ===== ===== Notes on interpretation =====
  
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 <blockquote>The average duration of symptoms for this group of patients is 19 years. Many in the cohort had unsuccessfully tried a variety of other approaches, including immunosuppressants prior to initiating The Protocol. <blockquote>The average duration of symptoms for this group of patients is 19 years. Many in the cohort had unsuccessfully tried a variety of other approaches, including immunosuppressants prior to initiating The Protocol.
  
-Capt. Tom Perez MPH</blockquote>+ //**Capt. Tom Perez,** MPH// </blockquote>
 {{tag> }} {{tag> }}
 +
 ===== Notes and comments ===== ===== Notes and comments =====
  
   * We should include some of the survey questions, so readers know what was asked. ... Ok, I'll work on that. -//J//   * We should include some of the survey questions, so readers know what was asked. ... Ok, I'll work on that. -//J//
   * <del>Given that there don't appear to be any meaningful distinctions between diseases, I am not sure the below chart offers anything substantive. It's not like a person can look at this chart, and say, "Okay, I see." What do you think about putting it out to pasture?  --- //Paul Albert 2009/01/02 09:12//</del> Removed. -//J//   * <del>Given that there don't appear to be any meaningful distinctions between diseases, I am not sure the below chart offers anything substantive. It's not like a person can look at this chart, and say, "Okay, I see." What do you think about putting it out to pasture?  --- //Paul Albert 2009/01/02 09:12//</del> Removed. -//J//
-  * I love this chart.  When I first saw it in the presentation on the link from the legacy site, it gave me a sense of the relative number of cohort members with various conditions, and gave me some documented evidence I could quote to friends with MP-treatable conditions.  The resolution of this chart on this site is much better than what I was originally able to see (from a photo showing the powerpoint in the background).  Even being able to read only the RA results clearly at that earlier time, it was helpful.  Shown clearly, I love it even more.  My one suggestion is that the link to this study, in Recovery Rate in the main Statistics article, is described only as methodology.  I was hoping to see the results, and seeing no link to results, I hit the methodology link just in case.  I'd like to see the link described as results AND methodology not just methodology, to make the info easier to find. -//Dody 2009/03/08//    +  * I love this chart.  When I first saw it in the presentation on the link from the legacy site, it gave me a sense of the relative number of cohort members with various conditions, and gave me some documented evidence I could quote to friends with MP-treatable conditions.  The resolution of this chart on this site is much better than what I was originally able to see (from a photo showing the powerpoint in the background).  Even being able to read only the RA results clearly at that earlier time, it was helpful.  Shown clearly, I love it even more.  My one suggestion is that the link to this study, in Recovery Rate in the main Statistics article, is described only as methodology.  I was hoping to see the results, and seeing no link to results, I hit the methodology link just in case.  I'd like to see the link described as results AND methodology not just methodology, to make the info easier to find. -//Dody 2009/03/08//  
- +  * It doesn't say how the patients were selected   
 +  * New sentence added to explain selection process.  --- //Joyful 05.27.2011//
home/publications/mp2008_survey.txt · Last modified: 09.14.2022 by 127.0.0.1
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