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--- home:tests:lung [11.11.2011] – [Imaging] paulalbert
+++ home:tests:lung [11.11.2011] – [Imaging] paulalbert
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 Another problem with imaging tests such as chest x-rays is that they do not provide data objectively.
-<blockquote>
+<blockquote>Trying to distinguish between inflammation and fibrosis is one of the confounding things about lungs. Our understanding is that it's rather difficult to determine whether opacities on chest x-rays are inflammation versus fibrosis. Actually, more sophisticated thin-sectioned, high-resolution computed tomographic scans (HRCTs) are usually used to try to determine whether it's inflammation or fibrosis, but even then it may be indeterminate. See this recently published article.
-"Trying to distinguish between inflammation and fibrosis is one of the confounding things about lungs. Our understanding is that it's rather difficult to determine whether opacities on chest x-rays are inflammation versus fibrosis. Actually, more sophisticated thin-sectioned, high-resolution computed tomographic scans (HRCTs) are usually used to try to determine whether it's inflammation or fibrosis, but even then it may be indeterminate. See this recently published article.
 If you remember, we do say in our patient recovery DVDs that chest imaging may get worse on the MP but improve later.  The reason we can expect chest imaging to worsen is because when the lungs are have an immunopathological reaction, inflammation will be worse - and that will likely be evident on any imaging.
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 I know fibrosis is a scary thought, but many patients on this forum have fibrosis and are doing well. It is possible to function quite well, even with pulmonary fibrosis - after you kick the disease. I am one proving this is true; I am in better physical shape than I was a decade or two ago. But it took a couple of years on the for me to feel like my lungs and physical abilities (stamina, strength) were really improving. Up to that time, my symptom resolution revolved around getting rid of intense pain, getting rid of insomnia, cognitive deficits, digestive problems, etc.)
-I suggest the bottom line is this: Whether your lungs have more inflammation or fibrosis, how much time and money to you want to expend toward tracking that down, and how does that change your treatment options." ~Belinda
+I suggest the bottom line is this: Whether your lungs have more inflammation or fibrosis, how much time and money to you want to expend toward tracking that down, and how does that change your treatment options.
 //**Belinda Fenter**, MarshallProtocol.com// </blockquote>
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+===== Working with physicians =====
+<blockquote>Clues to what your doctors are thinking about your pulmonary function might be found in their clinic notes which they dictate after each visit. The clinic will provide them if you ask.
+You said, "I have never read a radiologist report about my chest x-rays as they are taken and evaluated in the pulmonologist's office."
+Under the new HIPPA law, you have a right to have a copy of those, and all, test results. You may contact the clinic's health information office and ask them to send you a copy if you want one.
+Since you are already on the MP, there is little reason to undergo frequent testing. If you wait until you are further along, your tests will improve and the doctors won't have reason for concern….
+Imaging is an unreliable indicator of the degree of sarcoid inflammation. I am not sure why it is still embraced by the pulmonologist community - maybe because it is the only thing they can understand.
+//**Trevor Marshall, PhD**//</blockquote>

home/tests/lung.txt · Last modified: 09.14.2022 by 127.0.0.1