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Another problem with imaging tests such as chest x-rays is that they do not provide data objectively. | Another problem with imaging tests such as chest x-rays is that they do not provide data objectively. | ||
- | < | + | ===== Working with physicians ===== |
- | If you remember, we do say in our patient recovery DVDs that chest imaging may get worse on the MP but improve later. The reason we can expect chest imaging to worsen is because when the lungs are have an immunopathological reaction, inflammation | + | < |
- | Something to think about: Some people put a bit of planning into preparing for their chest imaging so they get the pictures done on one of their good days. While on the MP, this is possible by adjusting dosing or making clinic appointments to avoid the worst immunopathology days, since immunopathology comes in cycles related to antibiotic dosing. | + | You said, "I have never read a radiologist report |
- | It looks like you were in the middle of your antibiotic dosing cycle when your chest x-rays were made. Most people can expect more immunopathology mid-cycle of Phase Three. If you look back in your posts, you had also skipped around on your every-other-day dosing | + | Under the new HIPPA law, you have a right to have a copy of those, and all, test results. You may contact the clinic' |
- | I know fibrosis is a scary thought, but many patients on this forum have fibrosis and are doing well. It is possible | + | Since you are already on the MP, there is little reason |
- | I suggest | + | Imaging is an unreliable indicator of the degree of sarcoid inflammation. |
- | //**Belinda Fenter**, MarshallProtocol.com// </ | + | //**Trevor Marshall, PhD**//</ |
+ | ===== Patients experiences ===== | ||
- | ===== Working with physicians ===== | ||
- | < | + | < |
+ | I have great news! I passed my " | ||
- | You said, "I have never read a radiologist report about my chest x-rays as they are taken and evaluated | + | My DLCO is now at 45% (up from 30% in May 2006 on 6L of O2.) The technician predicted that my DLCO would be at 60% by the results of my flying test and my skin color. |
- | Under the new HIPPA law, you have a right to have a copy of those, | + | I am thrilled |
+ | |||
+ | Cheers! Sue | ||
+ | |||
+ | //**Sue Lyons**, MarshallProtocol.com// </ | ||
- | Since you are already on the MP, there is little reason to undergo frequent testing. If you wait until you are further along, your tests will improve and the doctors won't have reason for concern…. | ||
- | Imaging is an unreliable indicator of the degree of sarcoid inflammation. I am not sure why it is still embraced by the pulmonologist community - maybe because it is the only thing they can understand. | ||
- | //**Trevor Marshall, PhD**//</ | ||
- | ===== Patients experiences ===== | ||
< | < | ||
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Happy MPing, | Happy MPing, | ||
- | Saj | + | //**Saj**, MarshallProtocol.com// |
</ | </ | ||