This shows you the differences between two versions of the page.
Both sides previous revisionPrevious revisionNext revision | Previous revisionNext revisionBoth sides next revision | ||
home:diseases:scleroderma [01.18.2019] – [Notes and comments] sallieq | home:diseases:scleroderma [01.19.2019] – [Notes and comments] sallieq | ||
---|---|---|---|
Line 21: | Line 21: | ||
http:// | http:// | ||
</ | </ | ||
+ | |||
+ | ==== Management ==== | ||
+ | |||
+ | |||
+ | Hypodermitis sclerodermiformis. Successful treatment with ultrasound. | ||
===== A Guide to Antibiotic Therapy ===== | ===== A Guide to Antibiotic Therapy ===== | ||
Line 61: | Line 66: | ||
This capillaroscopic score may represent a feasible and simple tool in SSc patients' | This capillaroscopic score may represent a feasible and simple tool in SSc patients' | ||
+ | ===== Interview ===== | ||
+ | |||
+ | |||
+ | |||
+ | < | ||
+ | <div class=" | ||
+ | |||
+ | |||
+ | |||
+ | <div class=" | ||
+ | <div class=" | ||
+ | <div class=" | ||
+ | <div class=" | ||
+ | |||
+ | scleroderma | ||
+ | |||
+ | Read the [[http:// | ||
+ | |||
+ | < | ||
+ | |||
+ | <br clear=" | ||
+ | |||
+ | </ | ||
+ | </ | ||
+ | |||
+ | |||
+ | Interviews of patients with other diseases are [[home: | ||
+ | |||
+ | ===== Patient ===== | ||
Line 72: | Line 106: | ||
//fix**// reports Thu Oct 9th, 2014 " | //fix**// reports Thu Oct 9th, 2014 " | ||
+ | |||
//Dixie// posted Tue Jan 24th, 2012 17:44 to baypilot (Jen?) | //Dixie// posted Tue Jan 24th, 2012 17:44 to baypilot (Jen?) | ||
"I had hard white bumps on my right eyelid that is a result of calcification due to scleroderma. | "I had hard white bumps on my right eyelid that is a result of calcification due to scleroderma. | ||
- | //Dixie// "I was leaning towards getting mega IV doses of clinda because my scleroderma symptoms are worsening... | + | |
+ | |||
+ | Dixie "I was leaning towards getting mega IV doses of clinda because my scleroderma symptoms are worsening... | ||
+ | |||
I am tempted to start a regimen with herbs. | I am tempted to start a regimen with herbs. | ||
Line 83: | Line 122: | ||
- | (SDJoy Dixie: The fact that you have Scleroderma certainly could explain the increasing issues with your lungs. That is a difficult disease to say the least, and then you apparently have advanced Sarcoidosis on top of that. We do not necessarily get better the first 2-3 years (at least) on the MP. We usually have a lot of IP and feel worse before we begin to feel better. It takes many (but not all) of us some time on the MP before our symptoms get better, and as you know, Scleroderma can do a lot of damage to organs. And as I'm sure you know there are no other good options (steroids, etc.) Hang in there (and follow the guidelines and advice carefully) and in the next couple years you should see some gradual improvements in your symptoms and then eventually larger improvements and real reversal of the disease process. The Dr. in Vermont is correct; it could/will definitely take some time to reverse the scleroderma' | + | (//SDJoy to Dixie//: The fact that you have Scleroderma certainly could explain the increasing issues with your lungs. That is a difficult disease to say the least, and then you apparently have advanced Sarcoidosis on top of that. We do not necessarily get better the first 2-3 years (at least) on the MP. We usually have a lot of IP and feel worse before we begin to feel better. It takes many (but not all) of us some time on the MP before our symptoms get better, and as you know, Scleroderma can do a lot of damage to organs. And as I'm sure you know there are no other good options (steroids, etc.) Hang in there (and follow the guidelines and advice carefully) and in the next couple years you should see some gradual improvements in your symptoms and then eventually larger improvements and real reversal of the disease process. The Dr. in Vermont is correct; it could/will definitely take some time to reverse the scleroderma' |
+ | |||
Yes, I think that I have a double whammy. | Yes, I think that I have a double whammy. | ||
Line 91: | Line 132: | ||
// | // | ||
I noticed this week that the scleroderma on my foot it healing up slowly. However, my skin in generally in poor shape with infected folices on my chest, legs and back often. Small wart-like skin-colored growths continue to appear (they have been for long time, new ones keep arriving). | I noticed this week that the scleroderma on my foot it healing up slowly. However, my skin in generally in poor shape with infected folices on my chest, legs and back often. Small wart-like skin-colored growths continue to appear (they have been for long time, new ones keep arriving). | ||
+ | |||
+ | |||
Line 97: | Line 140: | ||
Last July after being on Minocin for a year for my Scleroderma, | Last July after being on Minocin for a year for my Scleroderma, | ||
- | **// | + | |
+ | |||
+ | // | ||
Dr Alan Cantwell spent a lot of his professional life looking at the links between Th1 bacteria and Scleroderma. You will find one of his papers on the subject at http:// | Dr Alan Cantwell spent a lot of his professional life looking at the links between Th1 bacteria and Scleroderma. You will find one of his papers on the subject at http:// | ||
+ | |||
+ | |||
+ | |||