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--- home:diseases:scleroderma [01.19.2019] – [Evidence of infectious cause] sallieq
+++ home:diseases:scleroderma [02.07.2019] – [Notes and comments] sallieq
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 ====== Scleroderma ======
+===== Introduction =====
 [[https://www.drugs.com/cg/scleroderma.html|described at drugs.com]] with
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 [[https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Scleroderma|Rheumatology definition]]
 ===== Evidence of infectious cause =====
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 look  for content in https://www.marshallprotocol.com/search.php?s=1&q=Scleroderma&forum_id=35
-fix** reports Thu Oct 9th, 2014  "Youngest daughter Lyme/Scleroderma/RA (age 18) has been on the MP for 5 years and 6 months. Massive improvement. Very occasional, very low grade IP remains, approx. 90% well"
+//fix**// reports Thu Oct 9th, 2014  "Youngest daughter Lyme/Scleroderma/RA (age 18) has been on the MP for 5 years and 6 months. Massive improvement. Very occasional, very low grade IP remains, approx. 90% well"
-Dixie posted Tue Jan 24th, 2012 17:44 to baypilot (Jen?)
+//Dixie// posted Tue Jan 24th, 2012 17:44 to baypilot (Jen?)
 "I had hard white bumps on my right eyelid that is a result of calcification due to scleroderma.  Within a few months of starting MP, they disappeared."
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-(SDJoy Dixie: The fact that you have Scleroderma certainly could explain the increasing issues with your lungs. That is a difficult disease to say the least, and then you apparently have advanced Sarcoidosis on top of that. We do not necessarily get better the first 2-3 years (at least) on the MP. We usually have a lot of IP and feel worse before we begin to feel better. It takes many (but not all) of us some time on the MP before our symptoms get better, and as you know, Scleroderma can do a lot of damage to organs. And as I'm sure you know there are no other good options (steroids, etc.) Hang in there (and follow the guidelines and advice carefully) and in the next couple years you should see some gradual improvements in your symptoms and then eventually larger improvements and real reversal of the disease process. The Dr. in Vermont is correct; it could/will definitely take some time to reverse the scleroderma's effects in your lungs. As far as the MP goes, perseverance is definitely a requirement! )
+(//SDJoy to Dixie//: The fact that you have Scleroderma certainly could explain the increasing issues with your lungs. That is a difficult disease to say the least, and then you apparently have advanced Sarcoidosis on top of that. We do not necessarily get better the first 2-3 years (at least) on the MP. We usually have a lot of IP and feel worse before we begin to feel better. It takes many (but not all) of us some time on the MP before our symptoms get better, and as you know, Scleroderma can do a lot of damage to organs. And as I'm sure you know there are no other good options (steroids, etc.) Hang in there (and follow the guidelines and advice carefully) and in the next couple years you should see some gradual improvements in your symptoms and then eventually larger improvements and real reversal of the disease process. The Dr. in Vermont is correct; it could/will definitely take some time to reverse the scleroderma's effects in your lungs. As far as the MP goes, perseverance is definitely a requirement! )
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-Bobsyouruncle  ec 2009 6  months in
+//Bobsyouruncle // ec 2009 6  months in
 I noticed this week that the scleroderma on my foot it healing up slowly. However, my skin in generally in poor shape with infected folices on my chest, legs and back often. Small wart-like skin-colored growths continue to appear (they have been for long time, new ones keep arriving).
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-Elijuh  as new member
+//Elijuh // as new member
 "
 Last July after being on Minocin for a year for my Scleroderma, I realized I had Lyme also.  "
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-Prof M Scleroderma is a Th1 disease. It is suspected to be due to inappropriate activity of the collagen oligomeric matrix protein (COMP) during the formation of the skin. COMP is a protein which relies upon Vitamin D, at least in part, for its stability. You might even see improvement when you cut your daughter's 25-D down to more reasonable levels, but I don't want to raise your hopes too much just yet:) Scleroderma is unlikely to to go away overnight:)
+//Prof M// Scleroderma is a Th1 disease. It is suspected to be due to inappropriate activity of the collagen oligomeric matrix protein (COMP) during the formation of the skin. COMP is a protein which relies upon Vitamin D, at least in part, for its stability. You might even see improvement when you cut your daughter's 25-D down to more reasonable levels, but I don't want to raise your hopes too much just yet:) Scleroderma is unlikely to to go away overnight:)
 Dr Alan Cantwell spent a lot of his professional life looking at the links between Th1 bacteria and Scleroderma. You will find one of his papers on the subject at http://www.JOIMR.org (search for 'scleroderma' on that page)
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-Elijuh
+//Elijuh//
 The vomiting is not something new and I am pretty sure it isn't totally IP.  It is partly the gastroparesis from the Scleroderma.  It always gets worse in March/April and then again in the fall.
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 by Dr. Alan Cantwell MD, Pat Ganger
 This easy-read article (with pictures) is intended as an Internet guide
+UNABLE TO FIND SO FAR, THEREFORE REMOVED BELOW
+ Bacterial Infection as the Cause of Scleroderma:
+by Dr. Alan Cantwell MD, Pat Ganger
+This easy-read article (with pictures) is intended as an Internet guide to considering this disease for antibiotic therapy, and a review of supporting literature. Dr Cantwell's illuminating microscopic work and understanding of CWD pathogens occupies the first half of the article. Pat Ganger completes the article as she describes her use of The Road Back therapy in the mid 1980's and how it saved her life (A 1995 Canadian study by Abu-Shakra and Lee showed 61% of systemic scleroderma patients died within 9 years).
+Pat Ganger continues to take minocycline today, 23 years later. (MPer's might see this as a complementary, but limited antibiotic therapy by today's MP standards, but also, there was no MP in 1985.)
 <DiseaseHierarchy>

home/diseases/scleroderma.txt · Last modified: 09.14.2022 by 127.0.0.1